Table 4.
Study | Chronic Disease of Focus |
Disease- specific Knowledge |
Adolescent Disease Responsibility |
Discussions about Transition |
Parent Involvement |
Perceived Medication Barriers |
---|---|---|---|---|---|---|
Beal (2016) | MCD* | |||||
Bingham (2015) | Rheumatology Diseases | |||||
Carlsen (2017) | IBD** | |||||
Dwyer-Matzky (2018) | MCD | ✓ | ||||
Eaton (2017) | MCD | ✓ | -- | |||
Eluri (2017) | Eosinophilic esophagitis/ eosinophilic gastroenteritis | |||||
Fenton (2015) | Kidney transplant | |||||
Fredericks (2010) | Liver transplant | |||||
Gilleland (2011) | Kidney Transplant | ✓ | ✓ | ✓ | ✓ | |
Gilleland Marchak (2015) | Kidney Transplant | ✓ | ✓ | ✓ | ||
Gray (2015) | IBD | |||||
Grimsby (2016) | Neurogenic bladder | |||||
Gumidyala (2018) | IBD | ✓ | ||||
Gutierrez-Colina (2017) | Pediatric Transplant | |||||
Haarbauer-Krupa (2019) | MCD | ✓ | ✓ | |||
Hart (2017) | MCD | |||||
Javalkar (2014) | Chronic kidney disease | |||||
Javalkar (2016) | MCD | |||||
Jensen (2017) | MCD | |||||
Johnson (2015) | MCD | |||||
Lazaroff (2018) | Juvenile Idiopathic Arthritis | |||||
Mackie (2016) | Heart disease/ transplant | |||||
McPherson (2009) | Sickle cell disease | |||||
Nazareth (2016) | MCD | |||||
Pakdeeprom (2012) | MCD | |||||
Rosen (2016) | IBD | |||||
Sawicki et al. (2014) | MCD | -- | ||||
Speller-Brown (2015) | Sickle cell disease | ✓ | ✓ | |||
Stewart (2017) | Heart disease | ✓ | ✓ | |||
Szalda (2017) | Cancer | |||||
Treadwell (2016) | Sickle cell disease | |||||
Uzark (2015) | Heart disease | |||||
Whitfield (2015) | IBD |
MCD – Multiple chronic diseases,
IBD – Inflammatory bowel disease,
= significance at the 0.05 level,
= studied but no association found