Table 2.
Frequencies for Each Item Regarding Needs in Palliative Caregiving and End‐of‐Life Communication, in Descending Order (N = 416)
| n (%) | |
|---|---|
| Needs in palliative caregiving | |
| Recognizing and dealing with certain behavior, such as agitation or aggression | 169 (41) |
| Recognizing discomfort and dealing with pain | 156 (38) |
| Guiding persons with dementia and their loved ones in the dying phase | 143 (34) |
| Recognizing and dealing with emotions, such as sadness, anxiety, or anger | 141 (34) |
| Communicating with persons with severe dementia | 139 (33)a |
| Recognizing (the start of) the dying phase | 129 (31) |
| Using (validated) instruments, e.g., for measuring symptoms | 113 (27) |
| Opportunities to get to know the person with dementia and their loves ones well | 109 (26) |
| My personal contribution to meaningful activities for persons with dementia | 107 (26) |
| Involving loved ones in the entire care process | 103 (25) |
| Recognizing and optimizing physical comfort | 89 (21) |
| Dealing with religious and existential questions | 84 (20) |
| Supporting loved ones after bereavement | 75 (18) |
| Feeling more comfortable interacting with loved ones | 41 (10) |
| Feeling more comfortable when caring for persons with dementia | 36 (9)a |
| Providing daily care/assisting self‐care (ADL and IADL) | 29 (7)b |
| Needs in end‐of‐life communication | |
| Dealing with disagreement between loved ones about end‐of‐life care | 240 (58) |
| Involving people with dementia in end‐of‐life decision making | 171 (41)b |
| Guiding people with dementia and their loved ones to document end‐of‐life wishes | 165 (40) |
| Having a conversation about the end of life | 136 (33) |
| Involving loved ones in end‐of‐life decision making | 130 (31) |
| Being able to retrieve documented end‐of‐life wishes | 118 (28) |
| Deciding on the right time to initiate end‐of‐life communication | 116 (28) |
| Feeling comfortable talking about the end of life with people with dementia and their loved ones | 101 (24) |