Box 8: Recommendations for patient-centered care | Ethical imperative, data or other considerations in support of the recommendation |
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The ultimate goal of food allergy care should be the empowerment of patients and their caregivers to manage the risk of food allergy reactions, reduce food-related anxiety and achieve a sense of control over their condition. This can be achieved in different ways for different patients. Tactful and empathic shared decision making with patients, their caregivers and the OIT provider, is necessary before making a decision to proceed with OIT |
This recommendation is based on the importance of understanding patients’ perspective, with thoughtful consideration for the needs and values of each individual, which is the essence of empathy, as well as on the importance of promoting patient empowerment, which reflects the principle of autonomy It is also based on the adequacy of the intervention in addressing the actual needs of patients It is supported by data from consultations with stakeholders and key aspects emerging from the literature |
Informed consent must be obtained before initiating OIT. This should include clear discussion of potential outcomes, risks and benefits, as well as of patients’ and their caregivers’ concerns, expectations and goals. Patients should be informed on how to recognize and manage reactions during therapy Throughout treatment, patients’ goals and perceived benefits should be reassessed periodically to ensure that clinical decisions continue to reflect their personal objectives. When appropriate, expected mild reactions should be framed in a positive manner that reduces perceived burden of therapy and promotes a sense of control |
This recommendation is based on the principle of decisional autonomy It is supported by data from consultation with stakeholders as well as a small amount of clinical evidence (one clinical trial on psychologic intervention in support of OIT [74]). Level of evidence: LOW |