Table I.

Search Strategy

PubMed	((((“Surveys and Questionnaires”[Mesh] OR “Psychological Tests”[Mesh]) AND ((asthma[tiab] OR epilepsy[tiab] OR transplant[tiab] OR HIV[tiab] OR sickle cell[tiab] OR Cancer[tiab] OR neoplasm[tiab] OR Dermatology[tiab] OR “Skin diseases”[tiab] OR “type 1 diabetes”[tiab] OR “inflammatory bowel diseases”[tiab] OR “cystic fibrosis”[tiab] OR “spina bifida”[tiab] OR “Spinal Dysraphism”[tiab] OR “rheumatic diseases”[tiab]) OR (“Diabetes Mellitus, Type 1”[Mesh] OR “Asthma”[Mesh] OR “Epilepsy”[Mesh] OR “Transplants”[Mesh] OR “Transplantation”[Mesh] OR “HIV”[Mesh] OR “Anemia, Sickle Cell”[Mesh] OR “Neoplasms”[Mesh] OR “Skin Diseases”[Mesh] OR “Inflammatory Bowel Diseases”[Mesh] OR “Cystic Fibrosis”[Mesh] OR “Spinal Dysraphism”[Mesh] OR “Rheumatic Diseases”[Mesh]))) AND ((“Guideline Adherence”[Mesh] OR “Self-Management”[Mesh]) AND (adherence[tiab] OR “self management”[tiab]))) AND ((“pediatrics”[MeSH Terms] OR “pediatrics”[All Fields] OR “pediatric”[All Fields]) OR (“infant”[MeSH Terms] OR “infant”[All Fields]) OR (“child”[MeSH Terms] OR “child”[All Fields]) OR (“adolescent”[MeSH Terms] OR “adolescent”[All Fields]))) AND english[filter] AND (“2008/01/01”[PDAT] : “3000/12/31”[PDAT])
CINAHL	((MH “Asthma+”) OR (MH “Epilepsy+”) OR (MH “Transplantation+”) OR (MH “Human Immunodeficiency Virus+”) OR (MH “Anemia, Sickle Cell+”) OR (MH “Neoplasms+”) OR (MH “Skin Diseases+”) OR (MH “Diabetes Mellitus, Type 1+”) OR (MH “Inflammatory Bowel Diseases+”) OR (MH “Cystic Fibrosis”) OR (MH “Spina Bifida”) OR (MH “Rheumatic Diseases+”) ) AND ((MH “Patient Compliance+”) OR (MH “Medication Compliance”) OR (MH “Self Care+”) OR “self management” ) AND (MM “Questionnaires+”) OR (MM “Psychological Tests+”) OR (MM “Research Instruments+”) Limiters - Published Date: 20080101-; English Language; Age Groups: All Child
HaPI	(asthma OR epilepsy OR transplant OR HIV OR sickle cell OR Cancer OR neoplasm OR Dermatology OR “Skin diseases” OR “type 1 diabetes” OR “inflammatory bowel diseases” OR “cystic fibrosis” OR “spina bifida” OR “Spinal Dysraphism” OR “rheumatic diseases” ) AND (adherence OR “self management” ) AND (infant OR child OR adolescent OR pediatric) Limiters—Publication Date: 2008-2016 Narrow by Language—English
APA PsycNet	(Any Field: asthma OR Any Field: epilepsy OR Any Field: transplant OR Any Field: HIV OR Any Field: sickle cell OR Any Field: Cancer OR Any Field: neoplasm OR Any Field: Dermatology OR Any Field: “Skin diseases” OR Any Field: “type 1 diabetes” OR Any Field: “inflammatory bowel diseases” OR Any Field: “cystic fibrosis” OR Any Field: “spina bifida” OR Any Field: “Spinal Dysraphism” OR Any Field: “rheumatic diseases”) AND (Any Field: adherence OR Any Field: “self management”) AND (Any Field: infant OR Any Field: child OR Any Field: adolescent OR Any Field: pediatric) AND Age Group: Childhood (birth-12 yrs) OR Neonatal (birth-1 mo) OR Infancy (2-23 mo) OR Preschool Age (2-5 yrs) OR School Age (6-12 yrs) OR Adolescence (13-17 yrs) AND Year: 2008 To 2019