Table 1.
Participants’ and non-respondents’ characteristics.
| Characteristics | Participants | Non-Respondents | ||||||
|---|---|---|---|---|---|---|---|---|
| All | Adults | Children | ||||||
| (n = 171) | (n = 111) | (n = 60) | (n = 226) | |||||
| M | SD | M | SD | M | SD | M | SD | |
| Age | 30.9 | 19.7 | 40.99 | 17.5 | 12.5 | 4.2 | 29.4 | 20.3 |
| n | % | n | % | n | % | n | % | |
| Gender | ||||||||
| Female/Male | 84/87 | 49/51 | 56/55 | 50.5/49.5 | 28/32 | 47/53 | 118/108 | 52/48 |
| Personal assistant | 145 | 86 | 93 | 86 | 52 | 87 | ||
| Diagnosis | ||||||||
| Cerebral palsy | 78 | 45.6 | 32 | 28.8 | 46 | 76.7 | 74 | 44.0 |
| Amyotrophic lateral sclerosis |
29 | 17.0 | 29 | 26.1 | 27 | 16.1 | ||
| Rett syndrome | 23 | 13.5 | 13 | 11.7 | 10 | 16.7 | 19 | 11.3 |
| Stroke, brain injury | 13 | 7.6 | 12 | 10.8 | 1 | 1.7 | 7 | 4.2 |
| Muscular dystrophy | 11 | 6.4 | 9 | 8.1 | 2 | 3.3 | 13 | 7.7 |
| Multiple sclerosis | 7 | 4.1 | 7 | 6.3 | 7 | 4.2 | ||
| Spinal cord injury | 3 | 1.8 | 3 | 2.7 | ||||
| Other a | 7 | 4.1 | 6 | 5.4 | 1 | 1.7 | 21 | 12.5 |
| Work | 23 | 13 | 23 | 21 | ||||
| School b | ||||||||
| Special school | 45 | 26 | 45 | 75 | ||||
| Mainstream school | 15 | 9 | 15 | 25 | ||||
| M | SD | M | SD | M | SD | M | SD | |
| Eye-gaze controlled computer access in years | 2.0 | 1.7 | 2.0 | 1.8 | 2.1 | 1.6 | 1.8 | 1.7 |
Note. Non-respondents with diagnosis, n = 168. a Other: e.g., Mitochondrial disease, thromboembolic disease, Huntington disease, neurological problem, severe intellectual disability, Ehlers–Danlos syndrome, unspecified physical disability; b School: Compulsory school and Upper Secondary school.