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. Author manuscript; available in PMC: 2020 Mar 23.
Published in final edited form as: IASSIST Q. 2020 Jan 8;43(4):952. doi: 10.29173/iq952

Table I:

Researchers (n=30)

Demographic Frequency Percenta
Age
20–29 0 0%
30–39 6 20%
40–49 14 47%
50–59 6 20%
60 or older 4 13%
Sex
Female 26 87%
Male 4 13%
Raceb
Asian 1 3%
Black or African American 7 23%
White 20 67%
Prefer not to answer 1 3%
Ethnicity
Hispanic or Latino 2 7%
Not Hispanic or Latino 28 93%
Region of Birth
United States 28 93%
Africa 1 3%
Asia 1 3%
Education
Doctoral Degree 28 93%
Other Degree 2 7%
Degree Field
Anthropology 4 13%
Communications 2 7%
Psychology 6 20%
Public Health 3 10%
Social Work 3 10%
Other 8 27%
Academic Rank
Instructor 1 3%
Assistant Professor 10 33%
Associate Professor 8 27%
Full Professor 7 23%
Other 4 13%
Years’ Experience
0–2 1 3%
3–5 3 10%
5–10 9 30%
10 or more 17 57%
Collecting Sensitive Datab
Personal Health Information (PHI) 19 63%
Sensitive non-PHI data 17 57%
Populations Studiedb
Healthy Individuals 24 80%
Patients 15 50%
Children 7 23%
Pregnant Women 3 10%
Older Adults 9 30%
Individuals with sensitive diagnoses 10 33%
Economically disadvantaged individuals 21 70%
Prisoners 4 13%
Other 13 43%
Methods Usedb
In-Depth Interviews 30 100%
Focus Groups 25 83%
Observations 18 60%
Community Based Participatory Research (CBPR) 15 50%
Coding of Archival Data 9 30%
Journals written by participants 2 7%
Other 3 10%
Has Shared Data with a Repository
Yes 1 3%
No 29 97%
Knows a Peer who has Shared Data with a Repository
Yes 4 13%
No 26 87%
a

Numbers may not add up to 100% due to rounding

b

Participants were asked to check all that apply so percentages will not equal 100%