Table I:
Demographic | Frequency | Percenta |
---|---|---|
Age | ||
20–29 | 0 | 0% |
30–39 | 6 | 20% |
40–49 | 14 | 47% |
50–59 | 6 | 20% |
60 or older | 4 | 13% |
Sex | ||
Female | 26 | 87% |
Male | 4 | 13% |
Raceb | ||
Asian | 1 | 3% |
Black or African American | 7 | 23% |
White | 20 | 67% |
Prefer not to answer | 1 | 3% |
Ethnicity | ||
Hispanic or Latino | 2 | 7% |
Not Hispanic or Latino | 28 | 93% |
Region of Birth | ||
United States | 28 | 93% |
Africa | 1 | 3% |
Asia | 1 | 3% |
Education | ||
Doctoral Degree | 28 | 93% |
Other Degree | 2 | 7% |
Degree Field | ||
Anthropology | 4 | 13% |
Communications | 2 | 7% |
Psychology | 6 | 20% |
Public Health | 3 | 10% |
Social Work | 3 | 10% |
Other | 8 | 27% |
Academic Rank | ||
Instructor | 1 | 3% |
Assistant Professor | 10 | 33% |
Associate Professor | 8 | 27% |
Full Professor | 7 | 23% |
Other | 4 | 13% |
Years’ Experience | ||
0–2 | 1 | 3% |
3–5 | 3 | 10% |
5–10 | 9 | 30% |
10 or more | 17 | 57% |
Collecting Sensitive Datab | ||
Personal Health Information (PHI) | 19 | 63% |
Sensitive non-PHI data | 17 | 57% |
Populations Studiedb | ||
Healthy Individuals | 24 | 80% |
Patients | 15 | 50% |
Children | 7 | 23% |
Pregnant Women | 3 | 10% |
Older Adults | 9 | 30% |
Individuals with sensitive diagnoses | 10 | 33% |
Economically disadvantaged individuals | 21 | 70% |
Prisoners | 4 | 13% |
Other | 13 | 43% |
Methods Usedb | ||
In-Depth Interviews | 30 | 100% |
Focus Groups | 25 | 83% |
Observations | 18 | 60% |
Community Based Participatory Research (CBPR) | 15 | 50% |
Coding of Archival Data | 9 | 30% |
Journals written by participants | 2 | 7% |
Other | 3 | 10% |
Has Shared Data with a Repository | ||
Yes | 1 | 3% |
No | 29 | 97% |
Knows a Peer who has Shared Data with a Repository | ||
Yes | 4 | 13% |
No | 26 | 87% |
Numbers may not add up to 100% due to rounding
Participants were asked to check all that apply so percentages will not equal 100%