Table III:
Curators (n=30)
| Demographic | Frequency | Percenta |
|---|---|---|
| Age | ||
| 20–29 | 1 | 3% |
| 30–39 | 12 | 40% |
| 40–49 | 9 | 30% |
| 50–59 | 6 | 20% |
| 60 or older | 2 | 7% |
| Sex | ||
| Female | 14 | 47% |
| Male | 16 | 53% |
| Raceb | ||
| Black or African American | 2 | 7% |
| White | 26 | 86% |
| Prefer Not to Answer | 2 | 7% |
| Ethnicity | ||
| Hispanic or Latino | 1 | 3% |
| Not Hispanic or Latino | 27 | 90% |
| Prefer Not to Answer | 2 | 7% |
| Region of Birth | ||
| United States | 25 | 84% |
| European Union | 4 | 13% |
| Oceania | 1 | 3% |
| Education | ||
| Some College | 1 | 3% |
| Bachelor’s Degree | 1 | 3% |
| Master’s Degree | 14 | 47% |
| Doctoral Degree | 14 | 47% |
| Years’ Experience | ||
| 0–2 | 8 | 27% |
| 3–5 | 8 | 27% |
| 5–10 | 4 | 13% |
| 10 or more | 10 | 33% |
| Personally Curates Data | ||
| Yes | 14 | 47% |
| No | 16 | 53% |
| Curates Sensitive Datab | ||
| Personal Health Information (PHI) | 12 | 40% |
| Sensitive non-PHI Data | 16 | 53% |
| Types of Data Personally Curatedb | ||
| Healthy Individuals | 16 | 53% |
| Patients | 11 | 36% |
| Children | 6 | 20% |
| Pregnant Women | 5 | 17% |
| Older Adults | 10 | 33% |
| Individuals with sensitive diagnoses | 6 | 20% |
| Economically disadvantaged individuals | 9 | 30% |
| Individuals with cognitive impairment | 4 | 13% |
| Prisoners | 4 | 13% |
| Other | 13 | 43% |
| Types of Data Deposited in Repositoryb | ||
| Quantitative | 24 | 80% |
| Qualitative | 23 | 77% |
| Mixed Methods | 25 | 83% |
| Other | 6 | 20% |
| Types of Data Curated by Repositoryb | ||
| None | 2 | 7% |
| Written Transcripts | 17 | 57% |
| Audio-recordings | 9 | 30% |
| Video-recordings | 9 | 30% |
| Field Notes | 12 | 40% |
| Archival Data | 17 | 57% |
| Journals written by participants | 5 | 17% |
| Other | 9 | 30% |
a
Numbers may not add up to 100% due to rounding
b
Participants were asked to check all that apply so percentages will not equal 100%