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. 2020 Mar 20;15:613–625. doi: 10.2147/COPD.S234418

Table 3.

Selected Participants’ Quotes on Self-Management Topics

Hospital map navigation “[The map] is not relevant, not helpful, [assessing] navigation is not necessary. Things [locations] just need to be clearly labelled in hospitals and they [patients] will get it.” – Asthma
“I hate the map; what relevance does it have?” – Asthma
Action plan “I have [an] action plan but I’m not sure if I should use it or if I should follow it properly because once I had flare up and I think it was not helpful. I don’t remember where I put it [action plan].” – COPD
“I like the action plan. I think this really helped me, with medication.” – Asthma
Prednisone use “I don’t like how it [prednisone] makes your heartbeat rise and I don’t know how prednisone is made. Prednisone does have a lot of drawbacks with only a few positives.” – Asthma
“Some people are on prednisone forever, it’s an awful way to live. It’s horrible. I never slept for three months, there’s no sleeping. Weight gain, yeah, I swell up, it was horrible.” – COPD
Flu prevention “I don’t think I’ve ever really discussed flu prevention as something to pay specific attention to, with someone with asthma.” – Asthma
“I cannot get the flu. I mean, I can’t get the flu, it’s dangerous for me, the flu will kill me, so I’m very careful. I get the flu shot, I wash my hands, I do all the stuff, avoid crowds, try not to fly, flight is the worst, contained spaces.” – COPD
Trigger exposure (eg, weather and air quality) “I mean, I hear it on the radio, so I wouldn’t say that I don’t monitor it but I don’t do anything.” – COPD
“If there’s a weather forecast, sometimes it will talk about pollen counts for seasonal allergies, it will talk about smog alerts, for people with respiratory issues [they] should stay home today. So, I, I do not seek those out but if it comes, if those kinds of warnings come with
the weather I do pay attention to those.” – Asthma
Peak flow meter use “If peak flow is bad, go see the doctor right away.” – Asthma
“I used the thing that you blow into and it tells you how much you blow out. I had one of those for years.” – Asthma
Inhaler use “For my understanding, there’s a bit of confusion whenever it comes to instructions on taking medication. It’s usually the pharmacist, because they ask you have you taken this before, and then, when I had a new form of inhaler or something that I had never used, they would demonstrate it. So yeah, I’ve never really had that.” – Asthma
“Okay. Um, those [inhaler use] were good questions.” – Asthma
Lifestyle (eg, healthy eating and exercise) “I don’t know that I would talk about diet, and mentioned exercise but not in specifics about I want to do this, so can we come up with a plan for me to be able to stabilize me being active?” – Asthma
“If a person wants to make a lifestyle change, they have to put in the effort. The person has to really commit to that.” – Asthma