Table 1.
Participant and Encounter Characteristics
| Participant Characteristics | VALUE |
|---|---|
| Child characteristics | |
| Age at enrollment (median, range) | 10.3 years (2.5–17.5 years) |
| Female gender, n (%) | 11 (31%) |
| Diagnosis | |
| Solid tumor, n (%) | 19 (54%) |
| Brain tumor, n (%) | 14 (40%) |
| Hematologic malignancy, n (%) | 2 (6%) |
| Vital status one year after recording | |
| Living, n (%) | 12 (34%) |
| Dead, n (%) | 12 (34%) |
| Unknown (second opinion without further follow-up), n (%) | 11 (31%) |
| Parent characteristics | |
| Female gender | 29 (83%) |
| White, non-Hispanic | 27 (77%) |
| Encounter Characteristics | |
| Length of Conversations | |
| Mean (Standard Deviation) | 71 minutes (29 minutes) |
| Range | 16 to 123 minutes |
| Primary or second opinion | |
| Primary oncology care, n (%) | 21 (60%) |
| Second opinion, n (%) | 14 (40%) |
| Number of participants in encounter | |
| 3 | 8 (23) |
| 4 | 12 (34) |
| 5+ | 15 (43) |
| Number of encounters that included participants | |
| Family | |
| Parent/Step-parent | 35 (100) |
| Child | 30 (86) |
| Grandparent(s) | 4 (11) |
| Sibling | 1 (3) |
| Clinicians | |
| Physician | 34 (97) |
| Nurse | 6 (17) |
| Nurse Practitioner | 5 (14) |
| Psychologist | 2 (6) |
| Interpreter | 1 (3) |