Table 3.
Examples of important life events where psychosocial support is crucial in people with cystic fibrosis.
| Childhood years | Adolescent years | Adult years |
|---|---|---|
| Starting kindergarten/day care/pre-school | Starting secondary school | Starting higher education |
| Starting school | Being a teenager with CF | Starting to work |
| First awareness of being different | First relationship | Starting a long-term relationship |
| Eating problems | First sexual experience | Parenthood |
| Sleeping problems | Death of a CF friend | Death of a CF friend |
| Behavioural problems (e.g. non-adherence) | Behavioural problems (e.g. non-adherence) | Behavioural problems (e.g. non-adherence) |
| Examples of key medical stages | ||
| CF diagnosis | Diagnosis of infertility | |
| First Pseudomonas infection | Treatment of infertility | |
| First episode of allergic bronchopulmonary aspergillosis | Awareness of deteriorating disease | |
| Gastrostomy placement | Transition to the adult clinic | |
| Diagnosis CF-related diabetes | Transition to transplantation | |
| First haemoptysis and other complications | Transition to end-of-life care | |
| Supplementary oxygen dependence | Transplantation | |
CF, cystic fibrosis.