Table 4.
Top ten ranking of stage 3 outcomes all 62 participants and per provider type
| Top ten – all 62 participants | Mean [SD] | Top ten – pediatric gastroenterologists [n = 28] | Mean [SD] | Top ten – gastroenterologists [n = 22] | Mean [SD] | Top ten – IBD nurses [n = 12] | Mean [SD] |
|---|---|---|---|---|---|---|---|
| Attends first adult GE appointment within the first 3–6 months after transfer | 4.37 [3.2] | Attends first adult GE appointment within the first 3–6 months after transfer | 4.11 [3.2] | Attends first adult GE appointment within the first 3–6 months after transfer | 4.14 [2.7] | Adherence to medication | 4.17 [3.2] |
| Contact IBD service independently | 5.15 [2.4] | Timely refilling own prescriptions | 5.04 [2.8] | Attends first adult GE appointment as planned at moment of transfer | 4.5 [3.5] | Timely refilling own prescriptions | 4.42 [1.9] |
| Attends first adult GE appointment as planned at moment of transfer | 5.40 [3.6] | Ability to recall dose/ frequency medications | 5.39 [2.6] | Contact IBD service independently | 4.91 [1.9] | Contact IBD service independently | 4.58 [3.0] |
| Timely refilling own prescriptions | 5.42 [2.7] | [Health-related] Quality of life 1 year after transfer | 5.43 [3.1] | Adherence to medication | 5.27 [2.4] | Attends first adult GE appointment within the first 3–6 months after transfer | 5.42 [3.8] |
| [Health-related] Quality of life 1 year after transfer | 5.44 [3.3] | Contact IBD service independently | 5.57 [2.5] | [Health -related] Quality of life 1 year after transfer | 5.32 [3.7] | Ability to recall dose/ frequency medications | 5.50 [1.7] |
| Ability to recall dose/ frequency medications | 5.53 [2.8] | Attends first adult GE appointment as planned at moment of transfer | 5.79 [3.7] | Patient satisfied about transition process | 5.41 [2.7] | [Health-related] Quality of life 1 year after transfer | 5.67 [3.2] |
| Adherence to medication | 5.55 [2.3] | Patient satisfied about transition process | 5.93 [2.4] | Ability to recall dose/ frequency medications | 5.77 [2.3] | Patient satisfied about transition process | 6.00 [2.1] |
| Patient satisfied about transition process | 5.76 [2.4] | Independent communication with treating physician/nurse | 6.00 [2.9] | Independent communication with treating physician/nurse | 6.27 [2.9] | Shows ability to make decisions regarding IBD | 6.00 [2.7] |
| Independent communication with treating physician/nurse | 6.31 [2.8] | Adherence to medication | 6.32 [2.7] | Timely refilling own prescriptions | 6.45 [2.7] | Attends first adult GE appointment as planned at moment of transfer | 6.17 [3.8] |
| Shows ability to make decisions regarding IBD | 6.65 [2.7] | Shows ability to make decisions regarding IBD | 6.68 [2.6] | Shows ability to make decisions regarding IBD | 6.95 [2.7] | Independent communication with treating physician/nurse | 7.08 [2.4] |
Note: the most important outcomes, with highest importance rank, are on the lower part of the list.
Abbreviation: GE: gastroenterology.