Table 1.
Sociodemographic, disease, and decision-making characteristics for participants (N=143).
Mean (SD) | Range | N (%) | N Missing | |
---|---|---|---|---|
Demographic Characteristics | ||||
Current Age (years) | 45.09 (5.93) | 27–54 | 1 | |
Country of Birth: % United States | 118 (82.5) | 1 | ||
Marital Status: % single | 94 (65.7) | 1 | ||
Education: up to GED/Diploma | 120 (83.9) | 1 | ||
Employment Status: % employed | 74 (51.7) | 1 | ||
Insurance Status: % insured | 119 (83.2) | 3 | ||
Cancer-related Medical Factors | ||||
Significant family history: % yes | 39 (27.3) | 2 | ||
Age at Diagnosis (years) | 42.87 (6.28) | 14–50 | 1 | |
Cancer Stage at Diagnosis | 0 | |||
Localized | 81 (56.6) | |||
Regional | 52 (36.4) | |||
Distant | 4 (2.8) | |||
Years from diagnosis to study enrollment | 2.38 (3.65) | 0.25–37.67 | 1 | |
Years from genetic testing to follow-up | 1.26 (0.27) | 0.75–2.50 | 0 | |
Hormone Receptor Status | ||||
Estrogen Receptor positive: % yes | 94 (65.7) | 7 | ||
Progesterone Receptor positive: % yes | 78 (54.5) | 11 | ||
HER2 receptor positive: % yes | 25 (17.5) | 21 | ||
Genetic Testing Result | 0 | |||
Carrier | 16 (11.2) | |||
VUS | 43 (30.1) | |||
No mutation | 84 (58.7) | |||
Decision-making Factors | ||||
Perceived absolute risk of cancer recurrence (%) | 22.30 (30.32) | 0–100 | 9 | |
Perceived risk of recurrence relative to other women over age 50 | 12 | |||
Much lower | 47 (32.9) | |||
A little lower | 11 (7.7) | |||
About the same | 40 (28.0) | |||
A little higher | 21 (14.7) | |||
Much higher | 12 (8.4) | |||
HBOC Knowledge | 5.06 (2.98) | 0–12 | 1 |