Incorrect/Incomplete diagnosis |
Neuromuscular and neurometabolic disorders may initially appear similar to individuals with CP and only later demonstrate clear progressive decline. Within a diagnosis of CP, dystonia can easily be overshadowed by spasticity, which can lead to suboptimal medical management100. |
Insufficient treatment |
There may be limitations from an insurance or psychosocial perspective |
Inappropriate treatment |
Children with dystonia are not good candidates for SDR77. |
Limited effective treatment options |
Hyperkinetic movements are notoriously difficult to treat. |
Overlooked comorbidity: pain, anxiety or mood |
Patient/family motivation is critical for the therapies that are required to complement and make medical or surgical interventions successful |
Patient expectations differ from provider goals |
Benefit from intervention is typically limited. Realistic, concrete goals should be set jointly between providers and families, communicated clearly, and re-evaluated regularly. |
Side-effects > benefits |
Some surgical interventions, both orthopedic and neurosurgical, can produce unwanted reduction in motor strength. Paradoxically, spasticity can be useful in some situations for scaffolding postures100. |