Table 5.
CHIP-16 | CHIP-45 |
---|---|
Family integration, cooperation and an optimistic definition of the situation (19 items) | |
Security and stability (2) | 1. Communicating about personal feelings and concerns with my spouse |
Security and stability (2) | 3. Trusting my spouse (or former spouse) to help support me and my child |
6. Believing that my child will get better | |
8. Showing that I am strong | |
11. Taking good care of all medical equipment at home | |
13. Getting other members of the family to help with chores and tasks at home | |
Belief and trust (5) | 16. Believing that the medical center/hospital considers my family’s best interest |
Belief and trust (5) | 18. Believing in God |
Home care (2) | 21. Doing things together as a family (involving all members of the family) |
23. Believing that my child is getting the best medical care possible | |
Home care (2) | 26. Doing things with family relatives |
28. Reminding myself that I have many things to be thankful for | |
Spouse and child relationship (4) | 31. Encouraging my child with a medical condition to be more independent |
Spouse and child relationship (4) | 36. Building a closer relationship with my spouse |
Spouse and child relationship (4) | 38. Investing myself in my child |
Family involvement (3) | 41. Trying to maintain family stability |
Family involvement (3) | 43. Having my child with a medical condition seen at a clinic/hospital on a regular basis |
44. Believing that things will always work out | |
45. Doing things with my children | |
Maintaining social support, self-esteem and psychological stability (18 items) | |
2. Engaging in relationships and friendships | |
4. Sleeping | |
7. Working in outside employment | |
9. Purchasing gifts for myself and/or other family members | |
12. Eating | |
14. Getting away by myself | |
Belief and trust (5) | 17. Building close relationships with people |
19. Developing myself as a person | |
22. Investing time and energy in my job | |
24. Entertaining friends at our home | |
27. Becoming more self-reliant and independent | |
29. Concentrating on hobbies (art, music, jogging, etc.) | |
32. Keeping myself in shape and well groomed | |
33. Engaging in social activities (parties, etc.) with friends | |
34. Going out with my spouse on a regular basis | |
37. Allowing myself to be angry | |
Family involvement (3) | 39. Communicating with someone (not professional counselor/doctor) about how I feel |
42. Being able to get away from the home care tasks and responsibilities for some relief | |
Understanding the health care situation through communication with other parents and consultation with the health care-team (8 items) | |
Belief and trust (5) | 5. Communicating with the medical staff (nurses, social worker, etc.) when we visit the medical center |
10. Communicating with other individuals/parents in the same situation | |
Belief and trust (5) | 15. Communicating with a doctor about my concerns about my child with a medical condition |
20. Communicating with other parents in the same type of situation and learning about their experiences | |
25. Reading about how other persons in my situation addresses the situation | |
30. Explaining family situation to friends and neighbors such that they can understand us | |
Spouse and child relationship (4) | 35. Ensuring that the prescribed medical treatments for my child are carried out at home on a daily basis |
40. Reading more about the medical problem that concerns me |
The number of items of each factor is indicated in parentheses