Table 4.
Data gap | System sector | Current state and potential development |
---|---|---|
Private hospitals | Hospital | No plans yet |
Private care homes | Social care | No plans yet |
Private GPs | Primary care | Still very small sector, but potential very limited |
Inpatient medications | Hospital | High-cost drugs already captured, but other drugs will need to come from pharmacy databases |
Inpatient scans | Hospital | National Diagnostic Imaging Data set is newest part of HES* and captures such tests but, crucially, not their results, which would come from other hospital-specific systems |
Inpatient lab test results | Hospital | No plans yet |
Quality of life | all | This can potentially be recorded using Read codes in GP records |
Patient activation measure | all | Already captured for around 5000 patients, and the number is growing |
Over the counter medication use | Community care | None unless reported by patient and coded by GP |
Medication adherence by the patient | all | Some Read codes exist for chronic diseases in primary care, usage unknown; some published algorithms exist for use with CPRD to estimate this |
Patient-reported outcome measures (PROMs) | all | Captured nationally only for 4 procedures, linked to HES* |
Real healthcare cost rather than price to the payer | Primary and secondary care | Not yet |
Ambulance service | ambulance | London Ambulance Service database to be linked soon |
NHS 111 telephone advice service | n/a | In discussion |
ONS mortality data | all | Not yet but high priority |
National clinical audits and registries | all | Could be linked via NHS number; CPRD link to several national audits e.g. cancer registry |
*HES Hospital Episodes Statistics (national hospital administrative database for England)