Table 1:
Characteristics of participants by site
| Characteristic | JHS (n=960) |
FHS (n=955) |
FHS Omni (n=160) |
|---|---|---|---|
| Age | |||
| N (% of total) with valid response* | 956 (99%) | 955 (100%) | 160 (100%) |
| Mean Age (standard deviation) | 63 (12) | 58 (14) | 64 (13) |
| Median Age (minimum-maximum) | 63 (29-95) | 58 (27-93) | 65 (27-89) |
| Gender | |||
| N (% of total) with valid response | 956 (99%) | 955 (100%) | 160 (100%) |
| Female | 66.2% | 55.2% | 61.9% |
| Race† | |||
| N (% of total) with valid response | 960 (100%) | 931 (97%) | 155 (97%) |
| African-American | 100% | 0% | 88.4% |
| White | 0 | 98.7% | 0.6% |
| Other‡ | 0 | 1.3% | 11.0% |
| Ethnicity | |||
| N (% of total) with valid response | 879 (92%) | 928 (97%) | 149 (93%) |
| Hispanic | 2.5% | 1.9% | 0.7% |
| Education | |||
| N (% of total) with valid response | 921 (96%) | 947 (99%) | 154 |
| High school graduate or less | 31.4% | 18.2% | 9.1% |
| Some college or technical school | 22.7% | 21.1% | 15.6% |
| College graduate or higher | 45.9% | 60.7% | 75.3% |
| Employment Status | |||
| N (% of total) with valid response | 927 (97%) | 939 (98%) | 156 (98%) |
| Employed | 41.9% | 59.0% | 43.6% |
| Retired | 38.8% | 30.1% | 48.7% |
| Other§ | 19.3% | 10.9% | 7.7% |
| Marital Status | |||
| N (% of total) with valid response | 913 (95%) | 940 (98%) | 151 (94%) |
| Single, never married | 11.5% | 7.9% | 10.6% |
| Married or living with partner | 48.5% | 75.0% | 55.6% |
| Divorced or separated | 20.4% | 10.3% | 19.9% |
| Widowed | 19.6% | 6.8% | 13.9% |
| Children | |||
| N (% of total) with valid response | 930 (97%) | 943 (99%) | 157 (98%) |
| Yes | 89.6% | 80.5% | 86.0% |
| Attendance at religious activities | |||
| N (% of total) with valid response | 901 (94%) | 888 (93%) | 151 (94%) |
| Nearly every day | 19.6% | 2.6% | 9.3% |
| At least once a week | 59.6% | 20.4% | 43.7% |
| Few times a month | 14.1% | 12.2% | 9.9% |
| Few times a year | 4.8% | 27.1% | 13.9% |
| Less than once a year or not at all | 1.9% | 37.7% | 23.2% |
| Religious preference | |||
| N (% of total) with valid response∥ | 960 (100%) | 955 (100%) | 160 (100%) |
| Protestant, Baptist | 59.4% | 4.7% | 29.4% |
| Protestant, Mainline | 13.2% | 10.1% | 22.5% |
| Protestant, other | 5.1% | 6.2% | 11.2% |
| Catholic | 2.5% | 51.4% | 8.1% |
| Other | 11.4% | 8.1% | 10.0% |
| None | 1.4% | 12.7% | 12.5% |
| Private | 4.4% | 5.8% | 3.8% |
| No response | 2.7% | 1.1% | 2.5% |
| Personal knowledge of someone with | |||
| N (% of total) with valid response | 941 (98%) | 953 (100%) | 158 (99%) |
| Blood Clot | 53.9% | 57.1% | 55.7% |
| N (% of total) with valid response | 937 (98%) | 946 (99%) | 159 (99%) |
| Alzheimer Disease | 67.0% | 77.4% | 79.3% |
| Personal experience with genetic testing | |||
| N (% of total) with valid response | 941 (98%) | 939 (98%) | 157 (98%) |
| Yes | 13.4% | 8.2% | 5.7% |
| Attitude toward genetic testing (continuous, range 1-5) | |||
| N (% of total) with valid response | 935 (97%) | 935 (98%) | 157 (98%) |
| Mean (standard deviation) | 4.4 (0.9) | 4.4 (0.8) | 4.1 (0.9) |
| Median (25th, 75th percentile) | 5.0 (3.7, 5.0) | 4.7 (4.0, 5.0) | 4.3 (3.3, 5.0) |
| Knowledge of genetic testing (continuous, range 0-7) | |||
| N (% of total) with valid response | 936 (97%) | 937 (98%) | 157 (98%) |
| Mean (standard deviation) | 3.5 (1.7) | 4.1 (1.5) | 3.9 (1.7) |
| Subjective numeracy (continuous, range 1-6) | |||
| N (% of total) with valid response | 944 (98%) | 945 (99%) | 159 (99%) |
| Mean (standard deviation) | 3.5 (1.3) | 4.3 (1.2) | 4.1 (1.3) |
| Median (25th, 75th percentile) | 3.7 (2.5, 4.5) | 4.5 (3.5, 5.3) | 4.3 (3.0, 5.3) |
*
Represents the number of nonmissing responses used in the denominator of each cell
†
The JHS survey did not ask about race because all members of the JHS are African-American
‡
Includes mixed, Native American, and Asian-American
§
Includes disabled, unemployed, in school, and homemaker
∥
To accurately represent response to the Religious preference item and to avoid more substantial amounts of missing data, responses of “prefer not to answer” were coded as a separate category (Private) and respondents who did not select any option were coded as a “No response” category.