Table 4.

The main characteristics of the four profiles

Component	Profile 1 Appreciation and contact person	Profile 2+ Supportive relationships	Profile 2- Omission of supportive relationships	Profile 3 Guidance, information and practical/medical support	Profile 4 More time off
Support needs to enable caregiver to provide care (co-worker)	Assigned contact person to coordinate care	Sharing care and shared decision-making	Sharing care and shared decision-making	Information and guidance (care coordination and illness trajectory) and practical/medical support (managing symptoms and medication)	Minimal; refrains from asking for help
Support needs for caregivers themselves (co-client)	Advice and listening ear	Take over care at night	Support with own feelings and worries, and take over care at night	No support needs expressed	More time off
Experienced support	Feels undervalued and wants more appreciation	Positive. Receives sufficient support from multiple sources	Negative. Feels neglected by healthcare professionals	Critical: wishes are not fulfilled by healthcare professionals	Critical: involvement of more professionals is at the expense of own privacy and quality of care
Experiences with caregiving	Providing care feels good	Care enhances relationship with relative	Feels overwhelmed and alone	Providing care is satisfying but not always easy	Care is demanding, and struggling with changing relationship with relative
Caregiver capacity	Can cope well with care, but needs empowerment	Can cope well with care and manages care pretty well	Struggling with care on their own	Can cope with care, but needs support to continue caregiving	Can hardly cope with care and experiences a heavy burden