Table I.

The intervention content and structure (Haahr et al., 2018, p. 178)

Meeting number	Focus area	Content of meeting	Structure; physical or phone meeting	Approx. time for meeting
First meeting	Everyday life at present and expectations for DBS	● daily life at present ● coping with PD ● expectations	Meeting between patient, spouse and DBS nurse Lasting approx. one hour	2–4 weeks before DBS
Second meeting	Changes in body, illness and everyday life.	● time immediately after DBS ● present challenges ● managing changes ● managing life and disease	Meeting between patient, spouse and DBS nurse Lasting approx. one hour	4–6 weeks after DBS
Telephone meeting	Follow-up phone meeting	● evaluating goals ● adjusting goals ● managing problems at present ● making arrangement for next meeting	Telephone meeting Lasting approx. 15–30 minutes	6–8 weeks after DBS
Third meeting	Taking responsibility for DBS now and onwards Living with DBS in the future	● focus on own resources and wishes for the future ● setting realistic goals ● looking back: now and then	Meeting between patient, spouse and DBS nurse Lasting approx. one hour	3 months after DBS
Telephone meeting	Managing changes	● identifying present questions ● supporting the ability to make choices and decisions	Telephone meeting Lasting approx. 15–30 minutes	4 months after DBS
Fourth meeting	Summarizing and evaluating	● everyday life with DBS at present ● everyday life in the long term ● evaluating participation in the intervention	Meeting between patient, spouse and DBS nurse	6 months after DBS

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