Table II.

An example of questions guiding the nurses at the second meeting (4–6 weeks after DBS)

Second meeting (first meeting after DBS): Changes in the body, illness and everyday life
Content and topics:
Changes in body and illness after DBS Changes in treatment strategy Challenges that patients and spouses experience after DBS Addressing expectations, wishes and goals for DBS
Questions that may be addressed by nurses:
How do you experience your everyday life with DBS treatment right now? How does DBS affect your everyday life? How do you manage changes in your everyday life, because of the DBS treatment? Have you engaged in any new activities since the surgery? Have you continued with your previous activities? Do you think about the DBS stimulation as part of your treatment? How do you experience the connection between stimulation, medication and symptoms? How do you experience your body? Does it react differently? If yes, what does that mean to you? What are your expectations to everyday life with PD and DBS for the next year?