Table II.
Items Retained and Factor Loadings for the Parental Efficacy and Control Questionnaire-Hematopoietic Stem Cell Transplant Measure Based on EFA
| Items | Factor 1 | Factor 2 | Factor 3 | Factor 4 |
|---|---|---|---|---|
| Factor 1: Medical Locus of Control | ||||
| 8. I can reach my child’s doctor by phone or email when I need to. | 0.77 | |||
| 9. I can reach my child’s nurse by phone or email when I need to. | 0.76 | |||
| 20. I have the ability to influence how my child feels about himself/herself. | 0.75 | 0.31 | ||
| 21. I can influence how my child feels about his/her medical condition. | 0.72 | 0.31 | ||
| 18. I can do a lot to prevent my child from getting infections. | 0.49 | |||
| 22. Whether my child stays healthy or not is just a matter of fate. | −0.47 | |||
| 10. Whether my child avoids infections is just a matter of luck. | −0.47 | |||
| 14. My child’s health is largely a matter of fortune. | −0.46 | |||
| Factor 2: Treatment-Specific Efficacy | ||||
| 31. I know… What to do if the medication causes a tummy ache. | 0.37 | 0.91 | ||
| 27. I know… What to do when my child is feeling sick to his/her stomach. | 0.40 | 0.85 | ||
| 29. I know… What to do if the medication causes side effects. | 0.95 | 0.82 | ||
| 30. I know… How to help my child if his/her medication tastes bad to him/her. | 0.81 | |||
| 28. I know… What to do if my child is having difficulty swallowing medication. | 0.80 | |||
| 54. I can make my child feel better when he/she is… Feeling sick to his/her stomach. | 0.39 | 0.74 | 0.32 | |
| 52. I can make my child feel better when he/she is… In pain. | 0.38 | 0.71 | 0.31 | |
| 35. I know… What to do when my child doesn’t want to eat or loses his/her appetite. | 0.45 | 0.66 | 0.39 | |
| 25. I know… What kind of behavior to expect from my child when we are at home. | 0.50 | |||
| 24. I know… What kind of changes to expect in my child when he/she is in the hospital. | 0.48 | |||
| 2. I am clear with the medical staff that I know what is best for my child | 0.41 | |||
| 13. I believe that I can tackle any problems with my child. | 0.36 | |||
| 12. I can approve OR decline any treatments offered to my child. | 0.33 | |||
| Factor 3: Perception of Support | ||||
| 47. My child’s nurses… Listen to me. | 0.97 | |||
| 48. My child’s nurses… Understand my concerns. | 0.91 | |||
| 46. My child’s nurses… Listen to my child. | 0.88 | |||
| 49. My child’s nurses… Feel that I know how to care for my child’s health care needs. | 0.87 | |||
| 50. My child’s nurses… Know how to take good care of him/her. | 0.86 | |||
| 51. My child’s nurses… Use language that I can understand. | 0.71 | 0.35 | ||
| 45. My child’s nurses… Understand my child’s medical condition. | 0.45 | |||
| 65. I feel comfortable… Asking others for help. | 0.36 | |||
| Factor 4: Expectations of Allied Health | ||||
| 70. Outpatient treatment right amount of: Physical therapy. | 0.97 | |||
| 71. Outpatient treatment right amount of: Occupational therapy. | 0.97 | |||
| 72. Outpatient treatment right amount of: Therapy from a psychologist. | 0.85 | |||
| 68. In hospital right amount of: Therapy from a psychologist. | 0.79 | |||
| 66. In hospital right amount of: Physical therapy. | 0.55 | 0.78 | ||
| 67. In hospital right amount of: Occupational therapy. | 0.56 | 0.77 | ||
| 73. Outpatient treatment right amount of: Time with a child life specialist. | 0.70 | |||
| 69. In hospital right amount of: Time with a child life specialist. | 0.35 | 0.67 | ||
Note. EFA = exploratory factor analysis. Only included factor loadings ≥|0.3|. The following items were removed from the measure based on the EFA results and can be found in the Supplementary Table I: 5, 19, 23, 33, 34, 36, 37, 39–42, 53, 55, 56, 58–60, and 62–64.