Table 3.
Baseline self-reported characteristics and stratified according to status at 18 month follow-upa among 411 patients from the Department of Neurology, Aarhus University Hospital May 2016–May 2018
| Total (%) | PRO-based follow-up | Conventional follow-up | End of outpatient care or emigrated | |
|---|---|---|---|---|
| N = 411 | n = 113 | n = 197 | n = 82 | |
| Social support for health (HLQ4) | ||||
| Mean (SD) | 3.3 (0.60) | 3.4 (0.49) | 3.2 (0.63) | 3.2 (0.67) |
| Median (IQR) | 3.4 (3.0 −3.8) | 3.4 (3.0−3.8) | 3.2 (3.0−3.6) | 3.4 (3.0−3.8) |
| Missing, n (%) | 10 (2.4) | |||
| Ability to actively engage with healthcare providers (HLQ6) | ||||
| Mean (SD) | 3.6 (0.95) | 3.9 (0.83) | 3.5 (0.98) | 3.6 (0.99) |
| Median (IQR) | 3.8 (3.0−4.2) | 4.0 (3.4−4.4) | 3.6 (3.0−4.2) | 3.8 (3.1−4.3) |
| Missing, n (%) | 9 (2.2) | |||
| Understanding health information well enough to know what to do (HLQ9) | ||||
| Mean (SD) | 3.6 (0.97) | 3.9 (0.78) | 3.5 (1.02) | 3.7 (0.95) |
| Median (IQR) | 3.8 (3.0−4.3) | 4.0 (3.5−4.4) | 3.8 (2.8−4.2) | 4.0 (3.2−4.4) |
| Missing, n (%) | 9 (2.2) | |||
| Self-efficacy (GSE) | ||||
| Mean (SD) | 27.4 (7.4) | 29.0 (5.9) | 26.0 (7.8) | 29.5 (6.6) |
| Median (IQR) | 29 (23−33) | 30 (26−32) | 27 (20−32) | 30 (26−34) |
| Missing, n (%) | 37 (9.0) | |||
| Well-being (WHO-5) | ||||
| Mean (SD) | 61.3 (23.9) | 66.8 (21.0) | 56.2 (24.9) | 66.9 (20.4) |
| Median (IQR) | 64 (48−80) | 72 (56−80) | 60 (36−76) | 72 (52−80) |
| Missing, n (%) | 17 (4.1) | |||
| General health, n (%) | ||||
| Excellent | 36 (8.8) | |||
| Very good | 94 (22.9) | |||
| Good | 149 (36.3) | |||
| Fair | 86 (20.9) | |||
| Poor | 33 (8.0) | |||
| Missing | 13 (3.1) | |||
| Patient activationb, n (%) | ||||
| Disagree strongly | 31 (7.5) | |||
| Disagree | 102 (24.8) | |||
| Agree | 170 (41.4) | |||
| Agree strongly | 94 (22.9) | |||
| Missing | 14 (3.4) | |||
| Patient activationc, n (%) | ||||
| Disagree Strongly | 49 (11.9) | |||
| Disagree | 86 (20.9) | |||
| Agree | 190 (46.2) | |||
| Agree strongly | 74 (18.0) | |||
| Missing | 12 (2.9) | |||
SD standard deviation; IQR interquartile range; HLQ Health Literacy Questionnaire; GSE General Self-efficacy scale; WHO-5 WHO-Five Well-being Index
aAccording to Statistics Denmark’s guidelines, the distribution of variables was not reported if a cell contained less than five observations. Among 411 patients, 19 patients had died at 18-month follow (data not shown)
bI am confident that I can tell when I need to get outpatient care
cI am confident I can figure out solutions when new situations or problems arise with my health condition