Table 1.

Summary of Participant characteristics across the three methods

Child demographics	PPI Group (n = 9 families; 5 young people; 10 parents; 2 grandparents)	Qualitative Interviews (n = 7 interviews with n = 8 parents)	Plan–Do–Study–Act Cycles
Sex	2 Female, 7 male	5 Female, 2 male	7 Female, 5 male
Age range	6–14	5–16	5–18
Epilepsy types	Range of seizure types including focal and generalised Range of seizure frequencies from monthly to multiple daily Dravet syndrome (n = 1)	Range of seizure types including focal and generalised Range—seizure free over a year to multiple daily seizures Genetic related (n = 1)	Range of seizure types including focal and generalised Range—seizure free over a year to multiple daily seizures Genetic epilepsies (n = 3)
Special educational needs?	8	7	11
Additional diagnoses recorded in clinical record?	Physical:  Vision problems (n = 1), kidney dysfunction (n = 1) Specific learning difficulties:  Dyslexia (n = 2) Neurodevelopmental:  ADHD (n = 3), ASD (n = 3)	Physical:  Cerebral Palsy (n = 2), autoimmune condition (n = 1), hemiplegia (n = 2) Neurodevelopmental:  ASD (n = 2), ADHD (n = 1)	Physical:  Hemiplegia (n = 2)  Cerebral Palsy (n = 2)  Leukodystrophy (n = 1) Neurodevelopmental:  ASD (n = 3), ADHD (n = 1)

ADHD Attention-Deficit Hyperactivity Disorder, ASD Autism Spectrum Disorder