TABLE 3.
Parent Characteristic | n (%) | 90% Cure, Mean Utility Score (SD) | P | No Cognitive Impairment, Mean Utility Score (SD) | P |
---|---|---|---|---|---|
Sex | .98 | .89 | |||
Female | 70 (74) | 47.7 (24.2) | 92.4 (39.4) | ||
Male | 25 (26) | 47.9 (17) | 91.1 (42) | ||
Parent perception of prognosis | .87 | .51 | |||
≥75% chance of cure | 81 (87) | 48 (23) | 91.1 (42.6) | ||
<75% chance of cure | 12 (13) | 46.9 (20.9) | 99.4 (17.4) | ||
Preferred timing of late-effects information | .14 | .75 | |||
In initial diagnosis and treatment discussions | 68 (72) | 45.6 (22.1) | 92.9 (41.3) | ||
Not in initial diagnosis and treatment discussions | 27 (28) | 53.2 (22.7) | 90 (36.8) | ||
Distress associated with late-effects information | .72 | .48 | |||
Extremely or very upsetting | 62 (67) | 47 (20.9) | 95 (35.5) | ||
Not extremely or very upsetting | 31 (33) | 48.7 (23.4) | 89.1 (43.3) | ||
College graduate | .06 | .48 | |||
Yes | 72 (76) | 50.2 (23.7) | 93.7 (39.9) | ||
No | 23 (24) | 40.1 (15.9) | 87 (40.4) | ||
Child age, y | .47 | .68 | |||
0–6 | 54 (57) | 46.4 (23.7) | 89.7 (42.9) | ||
7–12 | 23 (24) | 52.8 (26) | 98.5 (31.3) | ||
13–18 | 18 (19) | 45.5 (10.7) | 90.9 (41.5) | ||
Diagnosis | .1 | .66 | |||
Brain tumor | 11 (12) | 38.9 (17.1) | 102 (14.3) | ||
Extracranial solid tumor | 32 (34) | 43.8 (19.2) | 92.4 (37.6) | ||
Hematologic malignancy | 52 (55) | 52.1 (24.5) | 89.8 (44.8) | ||
Race and/or ethnicity | .41 | .25 | |||
White non-Hispanic | 73 (78) | 46.7 (21.4) | 95.1 (38.6) | ||
Other race and/or ethnicity | 20 (22) | 51.4 (26.7) | 83.5 (43.3) | ||
Time from diagnosis to survey completion, d | .6 | .8 | |||
First 100 | 20 (21) | 44.4 (24.6) | 93.9 (29.8) | ||
>100 | 75 (79) | 47.6 (23.4) | 91.6 (39.5) | ||
Recall of discussion of risk of cognitive impairment | .8 | ||||
Yes | 28/94 (30) | — | 90.7 (33.7) | ||
No or do not remember | 66/94 (70) | — | 92.3 (39.5) | ||
Perceived likelihood of cognitive impairment | — | .052 | |||
Extremely or very | 10/93 (11) | — | 71.8 (49.6) | ||
Somewhat | 21/93 (23) | — | 85.3 (33.8) | ||
A little or not at all | 62/93 (67) | — | 98.9 (34.1) |
Mean and SD hierarchical Bayesian utility scores were compared between groups by using the t test or analysis of variance. —, not applicable.