Patient perspectives on the impact of optic neuritis have been seldom reported in the medical literature.

There is growing recognition of the importance of the ‘patient voice’ in ophthalmology research and clinical practice.

Patient accounts provide valuable insights into the outcomes and metrics that matter most to patients.

A few patient-reported outcome measures have been developed in neuro-ophthalmology, and in multiple sclerosis and neuromyelitis optica spectrum disorder specifically. In our view, these are not yet psychometrically optimized for use in optic neuritis patients in routine clinical practice or clinical trials.

Technological developments are overcoming traditional barriers to the routine use of comprehensive patient-reported outcome measures.