Table 2.
Clinical practice | |
---|---|
Healthcare providers’ approach to care | |
All healthcare providers |
Focus on Functional status, symptom burden, and individual needs Smooth transition between levels Transfer of medical information Availability of healthcare personnel with competence in palliative cancer care 24/7 Available symptom assessment tools Support to carers |
Fully integrated outpatient clinic for cancer and palliative care | |
Staff | Oncologists and cancer nurses trained in palliative care |
Palliative care team |
Oncologist, cancer nurse, physiotherapist, occupational therapist, dietician, social worker, and chaplain Weekly meetings to coordinate patients’ services and for educational purposes |
Consultations |
Medical history and physical examination Social and living conditions Assessment of Symptoms using EAPC Basic Dataset [45] Performance status using ECOG/WHO PS scale [55] Weight and nutritional status Side effects of anti-cancer treatment Need of referral to palliative care team? Need of contact with community care? Discussed with the patient: Treatment intention, treatment plan, side effects, preferences Action plan for follow-up and evaluation Patient receives information (also written) regarding: Medication Ongoing anti-cancer treatment and side effects Resources available for the patient Contact information 24/7 Joint consultation with oncologist and nurse when anti-cancer treatment is stopped Routine consultation with cancer nurse before start of anti-cancer treatment |
Outpatient follow-up |
Adapted to where the patient is in the disease trajectory, symptom burden, needs and if the patient has contact with community care services: Visits at the Integrated Clinic Telephone follow-up from an oncology/palliative care nurse Referral to allied healthcare professionals Ambulatory home visits |
On-call service | 24-h to Integrated Clinic or ward (local hospital or tertiary hospital) staffed with nurses and physicians trained in cancer and palliative care |
Carers |
Encouraged to accompany the patient Assessment of carer’s needs by use of The Carer Support Needs Assessment Tool (CSNAT) [56] Separate carer consultations Follow-up of carers 4–6 weeks after patients’ death |
Hospital service | |
Inpatient care | Designated beds for palliative care |
Inpatient staff |
Ward cancer nurses trained in palliative care Ward rounds three times a week routinely and upon request by oncologist trained in palliative care |
Palliative care team (same team as at the Integrated Clinic) | Weekly meetings to coordinate patients’ services and for educational purposes |
Palliative care training |
Nurses are part of the network of resource nurses in cancer and palliative care Oncologist teaches internal medicine physicians in palliative cancer care four times a year |
Inpatient follow-up | Coordinated with follow-up from the outpatient clinic |
Community care | |
Staff | GP, resource nurses with expertise in cancer and palliative care, home care nurses, nursing home nurses and nurse assistants who have attended educational courses in palliative cancer care |
Community care access |
Contact with community cancer nurses and/or home care is offered repeatedly to patients and carers Contact information is given |
Communication between hospital and GP or physician at nursing home |
Routine (written information) Emphasis on communication of what information the cancer patient and their carers have received from the oncologist Telephone contact when the patient has a high symptom burden |
Communication between hospital and home care nurses | Routine, if applicable |
Follow-up |
Dependent on preferences, needs, symptom burden, geography and where the patient is in the disease trajectory: Contact with GP Contact with resource nurses in cancer and palliative care Home nursing care |