Table 1.
Demographic and treatment characteristics of 470 adult retinoblastoma survivors
| Variable | Overall (n = 404) |
Unilateral (n = 190) |
Bilateral (n = 214) |
|---|---|---|---|
| Age at study | |||
| Median (range) | 44 (18, 77) | 44.5 (19, 77) | 43 (18, 69) |
| Mean (SD) | 44.0 (11) | 44.6 (10.6) | 43.5 (10.4) |
| Gender | |||
| Male | 186 (46) | 81 (42.6) | 105 (49.1) |
| Female | 218 (54) | 109 (57.4) | 109 (50.9) |
| INSURANCE | |||
| No | 45 (11.1) | 28 (14.7) | 17 (7.9) |
| Yes, or Canadian resident | 357 (88.4) | 161 (84.7) | 196 (91.6) |
| NA | 2 (0.5) | 1 (0.5) | 1 (0.5) |
| INCOME | |||
| < $20,000/year | 36 (8.9) | 10 (5.3) | 26 (12.1) |
| ≥ $20,000/year | 340 (84.2) | 166 (87.4) | 174 (81.3) |
| Don’t know/missing | 28 (6.9) | 14 (7.4) | 14 (6.5) |
| COLLEGE | |||
| Complete high school or less | 57 (14.1) | 25 (13.2) | 32 (15) |
| Post-high school graduate or some college training | 336 (83.2) | 160 (84.2) | 176 (82.2) |
| Unknown/Missing | 11 (2.7) | 5 (2.6) | 6 (2.8) |
| Radiation Therapy | |||
| Yes | 213 (52.7) | 18 (9.5) | 195 (91.1) |
| No | 188 (46.5) | 170 (89.5) | 18 (8.4) |
| Unknown/Missing | 3 (0.7) | 2 (1.1) | 1 (0.5) |
| Chemotherapy | |||
| Yes | 112 (27.7) | 22 (11.6) | 90 (42.1) |
| No | 289 (71.5) | 165 (86.8) | 124 (57.9) |
| Unknown/Missing | 3 (0.7) | 3 (1.6) | 0 (0) |
| Surgery | |||
| Bilateral enucleation | 54 (13.4) | 0 (0) | 54 (25.2) |
| Unilateral enucleation | 350 (86.6) | 190 (100) | 160 (74.8) |