Table 2.

Interview script.

Interview Script
-What caregiving tasks do you perform?
-How much time do you spend on those tasks?
-Who else cooperates in the caregiving tasks? What do they do?
-How do you think your child’s care has changed your life?
-How has your child’s care had an impact on your health?
-How do you take care of yourself?
-What support have you found from professional resources? What do you think of the support received? How do you think more help could be offered?
-What does caring for your child mean for you?