Table 2.
Information Survivors Reported Receiving and Wanting
| Information | Received Verbally Only (%) | Received Written Only (%) | Received Verbally, Written or Both (%)* | Not Received (%) | Not Received but Wanted (%) |
|---|---|---|---|---|---|
| Follow-up plan or appointment schedule | 36.9 | 1.2 | 98.8 | 1.2 | 0.0 |
| Monitoring plan scans, blood tests | 43.5 | 2.4 | 94.1 | 5.9 | 20.3 |
| Late effects > 2 years after treatment | 24.7 | 33.0 | 92.6 | 7.4 | 0.0 |
| Detailed summary of treatment | 21.2 | 5.9 | 83.6 | 16.4 | 43.0 |
| Screening for new cancer diagnosis | 44.6 | 0.0 | 75.9 | 24.2 | 59.9 |
| Adverse effects first 1-2 years after treatment | 30.2 | 2.4 | 77.2 | 22.9 | 84.3 |
| Nutrition | 18.8 | 14.2 | 68.3 | 31.8 | 55.7 |
| Exercise | 25.0 | 6.0 | 59.6 | 40.5 | 47.2 |
| Support groups for survivors | 14.8 | 7.4 | 49.4 | 50.6 | 36.6 |
| Pain symptom management | 20.7 | 3.7 | 47.6 | 52.5 | 30.3 |
| Coping after treatment is over | 19.5 | 3.7 | 43.9 | 56.1 | 41.4 |
| Family adjustment after cancer | 11.1 | 2.5 | 37.1 | 63.0 | 43.2 |
| Integrative medicine | 14.6 | 7.3 | 36.5 | 63.5 | 44.3 |
| Resources around health Insurance | 10.8 | 4.8 | 33.7 | 66.3 | 25.5 |
| Strategies for fear of recurrence | 13.4 | 0.0 | 29.3 | 70.8 | 67.2 |
| Financial resources | 6.1 | 4.9 | 20.8 | 79.3 | 29.3 |
| Fertility | 10.1 | 0.0 | 19.0 | 81.0 | 12.5 |
| Genetic counseling | 9.7 | 0.0 | 18.0 | 81.9 | 27.1 |
| Sexual health | 11.3 | 1.3 | 16.4 | 83.8 | 31.4 |
| Vocational employment counseling | 3.8 | 0.0 | 6.3 | 93.7 | 22.9 |
| Smoking cessation | 1.3 | 1.3 | 6.5 | 93.5 | 7.0 |
*
Percentage of participants who received information on elements of survivorship care in any form.