Table 3.
Survivors' Preferences for Timing of Information
| Information | At Diagnosis (%) | During Treatment (%) | End of Treatment (%) | During Follow-Up (%) | Diagnosis Through Follow-Up (%) | Not Sure (%) | Do Not Need (%) |
|---|---|---|---|---|---|---|---|
| Detailed summary of treatment | 29.4 | 25.9 | 36.5 | 15.3 | 35.3 | 3.5 | 7.1 |
| Follow-up plan/appointment schedule | 14.1 | 16.5 | 35.3 | 36.5 | 38.8 | 1.2 | 0.0 |
| Monitoring plan scans, blood work | 16.5 | 15.3 | 37.7 | 41.2 | 42.4 | 0.0 | 1.2 |
| Adverse effects first 1-2 years | 21.2 | 14.1 | 34.1 | 38.8 | 38.8 | 2.4 | 2.4 |
| Late effects > 2 years | 17.7 | 8.2 | 25.9 | 48.2 | 43.5 | 2.4 | 3.5 |
| Screening for new cancers | 10.6 | 10.6 | 29.4 | 42.4 | 37.7 | 2.4 | 3.5 |
| Strategies for fear of recurrence | 9.4 | 10.6 | 30.6 | 34.1 | 29.4 | 5.9 | 14.1 |
| Coping after treatment | 7.1 | 12.9 | 40.0 | 27.1 | 22.4 | 9.4 | 21.2 |
| Family adjustment | 10.6 | 14.1 | 29.4 | 24.7 | 25.9 | 10.6 | 25.9 |
| Support groups | 10.6 | 9.4 | 25.9 | 20.0 | 21.2 | 11.8 | 24.7 |
| Pain symptom management | 23.5 | 21.2 | 14.1 | 12.9 | 38.8 | 0.0 | 28.2 |
| Integrative medicine | 22.4 | 9.4 | 14.1 | 10.6 | 30.6 | 8.3 | 22.4 |
| Nutrition | 22.4 | 18.8 | 15.3 | 15.3 | 47.1 | 1.2 | 12.9 |
| Exercise | 18.8 | 16.5 | 14.1 | 14.1 | 45.9 | 3.5 | 14.1 |
| Genetic counseling | 15.3 | 1.2 | 8.2 | 15.3 | 14.1 | 16.5 | 32.9 |
| Fertility | 22.4 | 4.7 | 7.1 | 10.6 | 5.9 | 5.9 | 50.6 |
| Sexual health | 20.0 | 11.8 | 14.1 | 17.7 | 22.4 | 4.7 | 35.3 |
| Smoking cessation | 9.4 | 3.5 | 5.9 | 3.5 | 14.1 | 9.4 | 54.1 |
| Financial resources | 23.5 | 3.5 | 5.9 | 7.1 | 25.9 | 8.3 | 34.1 |
| Vocational employment counseling | 8.2 | 3.5 | 9.4 | 11.8 | 14.1 | 10.6 | 49.4 |
| Resources around health insurance | 25.9 | 3.5 | 8.2 | 5.9 | 25.9 | 8.2 | 31.8 |
NOTE. Boldface indicates most commonly reported timing for the information, or information items “not needed.”