Table 2.
Case characteristics
| Characteristics | Children who died |
|---|---|
| Gender (n = 145), n (%) | |
| Male | 88 (61) |
| Female | 57 (39) |
| Year of death (n = 145), n (%) | |
| <2015 | 19 (13) |
| 2015 | 9 (6) |
| 2016 | 37 (26) |
| 2017 | 80 (55) |
| Mean age at death (n = 145), years (SD, range) | 6.0 (±6.2,range 0.0‐18.0) |
| Place of death (n = 145), n (%) | |
| Home | 42 (29) |
| Hospital | 100 (69) |
| Hospice | 2 (1) |
| Elsewhere | 1 (1) |
| Diagnosis (n = 145), n (%) | |
| Neoplasms | 23 (16) |
| Neurologic disorders | 26 (18) |
| Congenital anomalies | 14 (10) |
| Perinatal disorders | 24 (17) |
| Other | 58 (40) |
| Competent (n = 145), n (%) | |
| Yes | 24 (17) |
| No, due to young age | 79 (55) |
| No, due to developmental disorder | 26 (18) |
| No, due to low consciousness | 12 (8) |
| No, due to emotional distress | 2 (1) |
| No, due to other cause | 2 (1) |
| Involvement of respondent as primary physician in … (n = 145), N (%) | |
| Diagnostic phase | 82 (57) |
| Stable phase | 79 (55) |
| Phase of decline | 121 (83) |
| End of life phase | 118 (81) |
| Mean duration of involvement as primary physician (n = 145), years (SD, range) | 2.2 (3.8,range 0.0‐17.0) |