Table 2.
Gray Literature Tools.
| Source | Aim of educational tool | Content | Lessons learned from educational tool | |
|---|---|---|---|---|
| 1 | Northwest Regional Renal Program at Thunder Bay Regional Health Sciences Center 2016http://tbrhsc.net/new-kidney-treatment-video-aims-to-support-aboriginal-patients-in-decision-making/ | To create a decision-making support video with Indigenous renal patients for CKD treatment options | Treatment options included: conservative CKD management, kidney transplant, hemodialysis, and peritoneal dialysis. Changes in diet, residential environment, and family relationships are also discussed | Formal evaluation has not occurred, the videotaped CKD-related experiences of patients and families are anticipated to support decision making for Indigenous CKD treatment |
| 2 | Ontario Renal Network (2019) https://www.ontariorenalnetwork.ca/en/kidney-care-resources/clinical-tools/first-nations-inuit-metis |
To support access amongst First Nations, Inuit, and Métis people in language of preference: English, Oji-Cree, and Inuktitut | Fact Sheets for Diabetes, Phosphorus and Kidney Disease, and Sodium and Kidney Disease | Information sheets can be accessed by health care providers and Indigenous people with CKD to support learning |
| 3 | Kidneycheck.ca http://www.cansolveckd.com/research/kidney-check/about-kidney-check/ |
To provide traveling-team-based assessment and intervention for kidney, diabetes, and hypertension in rural and remote Canadian communities | A comprehensive website has been developed with a suite of provider resources for teaching and reporting to patients about CKD test results and interventions for prevention and treatment. Real-time results are provided along with postscreening educational tools | Content appears to be largely health provider focused with limited evidence of Indigenous cultural responsiveness. However, Kidney Check has developed tools to initiate leadership engagement in rural and remote areas including Indigenous communities |
| 4 | Kidney Health Australiahttps://kidney.org.au/your-kidneys/support/indigenous-resources | The following Kidney Health Australia resources were created to provide culturally responsive CKD educational and treatment support Tools | This electronic source contains comprehensive links to Indigenous CKD educational documents within a rural and remote Australian context for health care providers, Indigenous patients, and families | Australian Indigenous content may be considered for application to a northern Canadian context and used by health care providers in Indigenous education. Appear to be culturally appropriate and co-developed; however; process thereof is not known |
| 4 a | kidney.org.au/yourkidneys/support/indigenous-resources/kidney-stories | Indigenous produced video with narrative and song. Kidney Stories Video: Let the medicine come to you: PD—It’s Easy |
Includes recording of community interaction | |
| 4 b | https://kidney.org.au/cms_uploads/docs/how-do-my-kidneys-work-new.pdf | Information sheet with diagrams to describe kidney functioning and mal-function. | Clear pictorial and narrative messaging | |
| 4 c | https://kidney.org.au/your-kidneys/support/indigenous-resources/bush-tucker-healthy-eating-and-wellness-1299 | Bush Tucker in Diabetes and Kidney Failure book Designed for health professionals to teach Indigenous people with diabetes and CKD about diabetic and renal diets, specifically how to manage with local Australian fruits and vegetables |
Renal diet with Bush Tucker ingredients to afford local nutritional adaptations as part of managing CKD. May afford attention to how previous traditional diets may be applied to prevent and manage CKD. | |
| 4 d | https://kidney.org.au/advocacy/guidance-and-tools/indigenous-health/resources-for-health-professionals | Balanda Life Stories: Used to foster interactive learning and dialogue through contextualized Indigenous diagrams Flipcharts address conveys meaningful stories and key messages about kidney function, transplantation, and palliative care |
Provides examples of Indigenous interactive and relational learning strategies | |
| 5 | 3.5 Australian Screenhttps://kidney.org.au/cms_uploads/docs/kidney-stories-no-5-haemodialysis.pdf
https://kidney.org.au/cms_uploads/docs/kidney-stories-no-6-peritoneal-dialysis.pdf |
This provides further sublinks to the Indigenous resources in the areas of end-stage kidney treatment via dialysis | Series of Indigenous-oriented stories with diagrams, information flow from diagnosis to treatment in-hospital and home dialysis | |
| 6 | 3.6 NFSA Australian Screen https://aso.gov.au/titles/documentaries/big-girls-dont-cry/notes/ |
The film is created in English and Aboriginal languages of Pitjantjatjara, Warlpiri, and Arrernte. | “Big Girls Don’t Cry,” 3 videos illustrate how 3 women experience CKD. Five sections are included: • “How do you feel? • What is diabetes? • Why have I got diabetes? • What could happen to me? • If you have diabetes or think you might have diabetes.” |
For health professionals; no explanation of co-development To provide teaching that is in language of choice, clear understanding of medical terms, and meaningful interpretation Video conveys strength-based approach to treatment. |
| 7 | Indian Health Service: The Federal Health Program for American Indians and Alaska Natives https://www.ihs.gov/diabetes/clinicianresources/diabetes-education-lessonplan-outlines/ |
To provide diabetic teaching to foster self-management and prevention of diabetes | American Indians/Alaska Natives and Kidney Disease: what is it? Factual guides are available online regarding at risk factors, what patient should do, and how to prevent diabetes. Videos with Indigenous teaching content are also available |
Content appears to be health provider focused although cultural print and diagrammatic material is included to assist with lesson plans. No evidence is provided regarding co-development of teaching material although messaging exists to support working with Indigenous people |
| 8 | American Indians/Alaska Natives and Kidney Disease (The National Kidney Foundation, 2015)https://www.kidney.org/atoz/content/AmericanIndians-KD | To provide fact sheets both printable and online to support education and prevention of CKD | Fact sheets on CKD risk factors, kidney function and associated tests, and how to access care | Material does reference Indigenous cultural images and content; however, it does not reference co-development |
Note. CKD = chronic kidney disease; NFSA = National Film and Sound Archive; PD = peritoneal dialysis.