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. Author manuscript; available in PMC: 2021 May 1.
Published in final edited form as: Value Health. 2020 Mar 26;23(5):540–550. doi: 10.1016/j.jval.2020.02.001

Table 2.

Illustrative US-based RWD networks including NGS.

Cancer related Population based

  • ASCO CancerLinq

  • Flatiron Clinico-Genomic Database

  • Foundation Medicine Precision Medicine Exchange Consortium

  • ORIEN M2 Gen

  • Syapse Learning Health Network

  • Information Exchange and Data Transformation (INFORMED)

  • Tempus

  • iKnowMed

  • Cota Healthcare and Horizon BCBS of New Jersey

  • American Association for Cancer Research’s Genomics Evidence Neoplasia Information Exchange (GENIE)

  • All of Us Research Program*

  • Million Veterans Program

  • MyCode (Geisinger)

  • Healthy Nevada Project (Renown Institute)

  • Electronic Medical Records and Genomics Network (NHGRI)

  • Healthcare Resources and Services Administration (HRSA) Regional Genetics Network

  • Michigan DHHS Public Health Genomics

  • Alabama Genomic Health Initiative (AGHI)

NGS indicates next-generation sequencing; RWD, real-world data.

*

NGS testing currently in planning phase.