Table 2.
Case number |
Patient characteristics | Informal caregiver characteristics | Nurse characteristics | Medical specialist characteristics | Family physician characteristics | |||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|
Gender, age (years)a | Diagnosis | Survival after interview (days) |
Marital status | Religion | Country of origin | Relation, age (years)a | Gender, age (years)a | Specialty | Setting | Gender, age (years)a, specialisation | Gender, age (years)a | |
1 | M 80+ | Kidney failure | 30 | Partnership | – | Netherlands | Wife 70+ | M 50+ | Dialysis | General hospital | M 30+ internist | M 60+ |
2 | F 60+ | Melanoma | 35 | Married | Protestant | Netherlands | Husband 60+ | F 30+ | Oncology | Academic hospital | F 30+ internist | M 50+ |
3 | F 60+ | COPD | 12 | Single | Catholic | Germany | – | F 20+ | Oncology | General hospital | M 50+ pulmonologist | F 20+ |
4 | F 80+ | Dementia | 8** | Widow | Islamic | Turkey | Grandson 20+ | F 20+ | Oncology | Academic hospital |
F 30+ trainee geriatrician F 30+ internist |
M 30+ |
5 | F 60+ | Stomach cancer | *** | Divorced | Catholic | Suriname | – | – | – | – | M 60+ oncologist | – |
6 | M 70+ | Acute myeloid leukaemia | 67 | Married | – | Netherlands | – | M 50+ | Oncology | Academic hospital |
F 50+ haematologist F 30+ trainee haematologist |
– |
7 | M 50+ | Lung cancer | 35 | Single | Buddhist | Netherlands | Sister 50+ | F 50+ | Geriatrics, palliative care | Hospice | – | M 30+ |
8 | F 80+ | Colon cancer | 5 | Widow | Catholic | Netherlands | – | M 50+ | Palliative care | Hospice |
F 40+ oncologist |
– |
9 | M 60+ |
Mesothe- lioma |
54 | Married | – | Netherlands | Wife 50+ | F 50+ | – | Hospice |
M 30+ pulmonologist M 60+ anaesthesiologist |
– |
10 | M 70+ | Esophagus cancer | 19 | Widower | – | Netherlands | Daughter-in-law 40+ | F 40+ | – | Hospice | F 40+ elderly care | F 30+ |
11 | F 50+ | Lung cancer | 63 | Divorced | Protestant | Netherlands | Sister 40+ | F 50+ | Palliative care | Hospice |
F 50+ elderly care M 40+ trainee elderly care F 30+ pulmonologist |
– |
12 | M 80+ | Stomach cancer | 117 | Widower | Reformed | Netherlands | Son 40+ | F 50+ | Palliative care | Hospice |
F 30+ trainee elderly care |
– |
13 | M 60+ | Esophagus cancer | 54 | Married | – | Netherlands | – | – | – | – | F 40+ oncologist | M 30+ |
14 | M 90+ | Cardiac failure | 96 | Widower | – | Germany | Daughter 60+ | F 50+ | Geriatrics | Nursing home | M 20+ trainee cardiology | F 40+ |
15 | F 70+ | Mouth cancer | 43 | Married | – | Netherlands | Female friend 70+ | F 40+ | – | Home care | – | M 50+ |
16 | F 60+ | Lung cancer | 31 | Married | Catholic | Netherlands | – | – | – | – | F 30+ trainee pulmonologist | M 40+ |
17 | F 40+ | ALS | *** | Married | Catholic | France | Son# | F 50+ | # | Home care | M 30+ rehabilitation specialist | F 30+ trainee |
18 | M 80+ | Old age, cardiac failure, COPD | *** | Married | Catholic | Netherlands | Daughter 50+ | F 40+ | Occupational therapy | Home care | – | M 40+ |
M Male, F Female
ALS Amyotrophic lateral sclerosis, COPD Chronic obstructive pulmonary disease
a Age given in ranges: 20+: 20–29 years; 30+: 30–39 years etc.
**Could not be interviewed
***Survival longer than 6 months
# Missing