Table 2.

Quotes from patients’ and doctors’ views of REMORA

Quote no.	Quote
Acceptability and feasibility
1	I’m a bit of a 6:30 fan. I get a reminder at 6:30 and I try and do it then because I know what my memory’s like … I like that [reminder] because I know myself I’ve got to do it as soon as I get that reminder, if I’m able to. I have to get it done then because I do tend to get into something else and then I completely forget. [P6]
2	It’s good, alright, it’s fine … The first few days, yeah, I couldn’t—I kept forgetting how to get onto the app but no, yeah, it’s a doddle … my grandson came and he showed me what to do. But I’ve done it greatly since. I’ve not forgotten how, you know. I remembered what he taught me and I did it and yeah, and it’s good. [P10]
3	I would do it on my bad days, I probably wouldn't on my good days. But I take methotrexate and I take that weekly. I could discuss my week with an app when I'm taking my tablets. [P2]
4	Everything seems to have just calmed down … it took about 3 weeks or so and then all of a sudden just nothing at all; so I suppose from my perspective, with putting all the readings at zeros, it became a bit laborious … just that because some of them [questions] are there every day, it’s very repetitive, ‘And how are you feeling today?’ and ‘Are you still in a job?’ … ‘[I’ve] told you once’. [P1]
Providing the ‘bigger picture’ of RA
5	The other night my wrist … was so bad I could have chopped that arm off … I went to get the app because I thought, I want to put it on. It was just a natural thing, I need to put this down, I need to make this—you know, so I can remember to tell the consultant how I felt right now. [P15]
6	It's difficult because sometimes you're fine and you have to go and see the doctor, and the doctor asks all these questions, but this [app] sort of builds a picture in that respect. [P18]
7	He said to me, ‘How are you?’ like that particular day and I was fine … And he was able to say to me, well, you weren’t so good, you had a bit of a blip on such and such a day … I’d forgotten about that [at previous visit] I had the steroid injection and I felt so much better, more or less immediately … But yeah, I’d still had a bit of a blip in between all that and he was able to see that. [P2] (Fig. 4A)
8	The graphic was perfect … you could see the trend, which I found very encouraging because up until then I thought these biologics are expensive, why aren’t they working? … It’s only really when I saw that graph that they were giving more than I realized. [P12] (Fig. 4B)
9	There’s the ability to see the impact of interventions and see the rapidity of change. There was the ability to see gradual trends in disease severity within day-to-day fluctuations that might otherwise obscure that gradual trend. [D2] (Fig. 4B)
10	So you say to patients, Oh, how have you been? I've been fine. Have you had any flares? No. Okay, great. Well, just carry on then because you believe them. But in this case, somebody might say the same things and I'd say, Well actually, your chart on pain says you had a big blip here. Look at it. And they say, Oh yes. And then you'd say, Well, did something … can you remember that? Did something happen? And then they'd say, Oh yes. [D1]
Enabling patient-centred consultations
11	It made a difference, because it wasn’t all me telling him and trying to remember, the information was there, so you’ve got solid proof straightaway. [P1]
12	Sometimes you do feel as if you’re just moaning all the time, I’m in pain, or whatever. But if it’s there and he can see it on the screen, it’s like it’s said it for you. [P2]
13	I think it makes it more personal to you. Because then [the rheumatologist] is looking on the app as how I’ve felt, how I’ve interpreted my rheumatoid … So yeah, I think it would give you a little bit more confidence too … So to see it on the screen over the 6 months, then I think you’d feel better knowing that they’re looking at you, rather than what they’ve wrote about you [previously]. [P14]
14	How can you talk about something when there’s missing information? So if you’ve got that graph, there’s your information, you’ve got your information, he’s got his information … so when it’s there it’s a shared conversation between us … rather than him asking me questions and me trying to answer them. [P9]
15	Where the app data did uncover different patterns, we were then able to discuss using that visual aid of the graph. And that then supporting people to remember what had happened and being able to explain in more detail. [D2]
16	I knew that we don't address fatigue as much as they would like us to, and that's partly because there's very little to do about it. And as medics we like to fix things and you can't fix it. But actually, I will in future. [D1]
17	I don’t know about [the original rheumatologist] because I think he was old school … Yeah, I don’t think he would have appreciated a mobile phone. However, I think at [a different hospital] when I used to go in … I think we could have talked about that [app data] and then talked about what had gone on over 3 months. [P15]
18	I didn’t see [the research rheumatologist] in a strictly medical context … with [the usual rheumatologists] … it was a different type of consultation … I mean I felt much more at ease with [the research rheumatologist] … not that there’s any problem with [the usual rheumatologist]. [P16]

D: doctor; P: patient; REMORA: Remote Monitoring of RA.