Table 5.
“Good” QOL rankings.
| “Good” QOL disabilities | Families, n = 901 | Physicians, n = 112 | p* | ||
|---|---|---|---|---|---|
| Overall ranking | No. who selected n (%) |
Overall ranking | No. who selected n (%) |
||
| Need for glasses or contacts | 1 | 835 (92.7) | 2 | 103 (92.0) | |
| Hearing impairment, not deafness | 2 | 799 (88.7) | 1 | 105 (93.6) | |
| Need for orthopedic support to walk | 3 | 783 (86.9) | 3 | 98 (87.5) | |
| Learning disorder diagnosis | 4 | 747 (82.9) | 5 | 92 (82.1) | |
| Deafness | 5 | 710 (78.8) | 7 | 76 (67.9) | 0.006 |
| Physically looking different than others | 6 | 672 (74.6) | 6 | 95 (84.8) | |
| Need for one or more future surgeries | 7 | 659 (73.1) | 4 | 96 (85.7) | 0.007 |
| Blindness | 8 | 652 (72.4) | 11/12/13 | 63 (56.3) | <0.001 |
| Absent or handicapped limbs(s) | 9 | 622 (69.0) | 14 | 61 (54.5) | 0.001 |
| Mental health problems | 10 | 597 (66.3) | 11/12/13 | 63 (56.3) | 0.027 |
| Able to sit but unable to stand or walk | 11 | 555 (61.6) | 20 | 63 (56.3) | |
| Need for organ or bone marrow transplant | 12 | 551 (61.2) | 8 | 69 (61.6) | |
| Need for frequent hospital stays | 13 | 477 (52.9) | 9 | 67 (59.8) | |
| Incontinence | 14 | 470 (52.3) | 15 | 53 (47.3) | |
| Inability to obtain a formal education/intellectual disability | 15 | 456 (50.6) | 17 | 41 (36.6) | 0.004 |
| Nonverbal | 16 | 435 (48.3) | 18 | 31 (27.7) | <0.001 |
| Need for a tracheostomy or g-tube | 17 | 400 (44.4) | 10 | 66 (59.0) | 0.005 |
| Inability to interact with others in a formal or informal social setting | 18 | 398 (44.2) | 19 | 28 (25.0) | <0.001 |
| Need for a ventilator | 19 | 271 (30.1) | 16 | 42 (37.5) | |
| Unable to get out of bed/sit up | 20 | 239 (26.5) | 11/12/13 | 17 (15.2) | 0.008 |
*Unlisted p values were not statistically significant.