Table 1.
Respondent characteristics.
| Characteristic | Statistic N = 210 |
|---|---|
| Country; n (%) | |
| France | 29 (14) |
| Germany | 26 (12) |
| Italy | 30 (14) |
| United Kingdom | 20 (10) |
| United States of America | 105 (50) |
| Sex; n (%) | |
| Female | 99 (47) |
| Male | 111 (53) |
| Employment status; n (%) | N = 207* |
| Full time | 76 (38) |
| Part time due to spasticity | 72 (35) |
| Part time (not due to spasticity) | 10 (5) |
| Do not work due to spasticity | 32 (16) |
| Do not work (not due to spasticity) | 15 (8) |
| Student | 2 (1) |
| Age (years); mean [95% CI] | 47.2 [45.9, 48.5] |
| Age category; n (%) | |
| <40 years old | 39 (19) |
| 41–50 years old | 110 (52) |
| 51–60 years old | 48 (23) |
| >60 years old | 13 (6) |
| Age at time of event (years); mean [95% CI] | 42.7 [41.3, 44.2] |
| Etiology; mean [95% CI] | |
| Stroke | 45.3 [43.3, 47.4] |
| TBI | 40.6 [37.5, 43.7] |
| SCI | 40.8 [38.6, 43.0] |
| Time since event (years); mean [95% CI] | 4.6 [3.8, 5.4] |
| Time category; n (%) | |
| <2 years | 44 (21) |
| 2–5 years | 118 (57) |
| 6–10 years | 26 (12) |
| >10 years | 19 (9) |
| Do not remember | 3 (1) |
| Symptoms experienced in past year; n (%) | |
| Muscle stiffness/rigidity | 148 (70) |
| Muscle spasms | 132 (63) |
| Muscle pain | 108 (51) |
| Unwanted movements of the affected limb | 86 (41) |
| Difficulties moving my leg, falling, tripping, loss of balance | 104 (50) |
| Difficulties moving my arm/hand, extending my arm, opening my hand | 82 (39) |
| Currently receiving BoNT-A; n (%) | 203 (97) |
| AbobotulinumtoxinA (Dysport) | 41 (20) |
| IncobotulinumtoxinA (Xeomin) | 44 (21) |
| OnabotulinumtoxinA (Botox) | 112 (53) |
| BoNT-A product unknown | N = 6 (3) |
| No (stopped in past 12 months) | 7 (3) |
| Time since first BoNT-A injection | |
| <2 years | 102 (48) |
| 2–5 years | 88 (42) |
| >5 years | 12 (6) |
| Do not remember | 8 (4) |
| Injected limbs; n (%) | |
| 1 Upper limb only | 53 (25) |
| Both upper limbs | 37 (18) |
| 1 Lower limb only | 42 (20) |
| Both lower limbs | 42 (20) |
| One side (upper and lower limbs) | 31 (15) |
| Diagonal (upper and lower limbs) | 4 (2) |
| ≥2 Limbs | 1 (0) |
Employment status for respondents > 65 years old was not analyzed.