Table 1.
Sample characteristics
| Baseline Characteristics | Baseline sample (n=100) | Follow-up Sample (n=42) |
|---|---|---|
| Child | ||
| Mean Age (SD) | 13.54 (2.74) | 14.95 (2.37) |
| Sex (female) | 61 (61.0) | 25 (59.5) |
| Race (African American) | 94 (94.0) | 40 (95.2) |
| Hemoglobin type | ||
| HbSS | 77 (77.0) | 33 (78.6) |
| HbSC | 15 (15.0) | 6 (14.3) |
| HbS β+Thalassemia | 5 (5.0) | 2 (4.8) |
| HbS β0Thalassemia | 3 (3.0) | 1 (2.4) |
| SCD Treatments or Complications | ||
| Hydroxyurea | 60 (60.0) | 29 (69.0) |
| Chronic Transfusion Therapy | 16 (16.0) | 7 (16.7) |
| Presence of Avascular Necrosis┼ | 3 (7.1) | 6 (14.3) |
| Parent | ||
| Reporter (mother/stepmother) | 85 (85.0) | 35 (83.3) |
| Marital Status | ||
| Married | 42 (42.0) | 13 (31.0) |
| Single | 37 (37.0) | 15 (35.7) |
| Divorced/Separated | 17 (17.0) | 11 (26.2) |
| Widowed | 4 (4.0) | 3 (7.1) |
| Highest grade completed | ||
| High School or less | 28 (28.0) | 10 (23.8) |
| Some college | 29 (29.0) | 12 (28.6) |
| College degree | 26 (26.0) | 14 (33.3) |
| Graduate or Professional degree | 16 (16.0) | 6 (14.3) |
| Missing | 1 (1.0) | |
| Annual family income | ||
| ≤$10,000 | 22 (22.0) | 10 (23.8) |
| $10,001–20,000 | 16 (16.0) | 8 (19.0) |
| $20,001–30,000 | 8 (8.0) | 3 (7.1) |
| $30,001–50,000 | 22 (22.0) | 9 (21.4) |
| $50,001–75,000 | 12 (12.0) | 4 (9.5) |
| ≥$75,001 | 12 (12.0) | 4 (9.5) |
| Prefer not to answer | 8 (8.0) | 4 (9.5) |
Note:
┼
presence of avascular necrosis is based on the sample of n=42 that completed both baseline and follow-up assessments.