Table 1.
Most frequently mentioned beliefs from the elicitation interviews (Phase 1)*
| Type of Belief | Belief | N (%) |
|---|---|---|
| Behavioral Beliefs | ||
| Advantage | Get accurate information | 26 (43%) |
| Advantage | Hear directly from physician | 25 (42%) |
| Advantage | Provide support to parent | 22 (37%) |
| Advantage | Face-to-face communication, personal connection | 21 (35%) |
| Advantage | Provide additional information to physician | 9 (15%) |
| Advantage | Ask questions directly to physician | 8 (13%) |
| Disadvantage | Parent is resistant | 21 (35%) |
| Disadvantage | Presence might inhibit parent sharing with physician | 11 (18%) |
| Normative Beliefs | ||
| Norm - Approve | Siblings | 32 (53%) |
| Norm - Approve | Spouse | 24 (40%) |
| Norm - Approve | Participant’s other parent/ Target parent’s spouse | 19 (32%) |
| Norm - Approve | Family (general) | 10 (17%) |
| Norm - Approve | Target parent | 10 (17%) |
| Norm - Disapprove | Target parent | 23 (38%) |
| Norm - Disapprove | Participant’s siblings | 9 (15%) |
| Self-Efficacy Beliefs | ||
| Barrier | Logistics | 41 (68%) |
| Barrier | Scheduling | 28 (47%) |
| Barrier | Distance | 19 (32%) |
| Barrier | Others’ attitudes | 12 (20%) |
| Facilitators | Logistics | 32 (53%) |
| Facilitators | Scheduling | 20 (33%) |
| Facilitators | Others’ attitudes | 9 (15%) |
| Facilitators | Getting information | 8 (13%) |
*
Beliefs were included if mentioned by >10% of sample.