Table 1. Demographic and Clinical Characteristics of Participants at Session 1.
| Variable | Participants, No. (%) (N = 160) | |
|---|---|---|
| Adolescents (n = 80) | Families (n = 80) | |
| Age, mean (SD) [range], y | 16.9 (1.8) [14-20] | 45.3 (8.3) [19-67] |
| Sex | ||
| Male | 36 (45.0) | 14 (17.5) |
| Female | 44 (55.0) | 66 (82.5) |
| Race | ||
| Asian | 3 (3.8) | 3 (3.8) |
| Black or African American | 12 (15.0) | 10 (12.5) |
| White | 60 (75.0) | 65 (81.3) |
| > 1 Race | 4 (5.0) | 2 (2.5) |
| Declined | 1 (1.3) | 0 |
| Ethnicity | ||
| Hispanic or Latino | 5 (6.3) | 4 (5.0) |
| Not Hispanic or Latino | 74 (92.5) | 76 (95.0) |
| Declined | 1 (1.3) | 0 |
| Diagnosis | ||
| Leukemia | 25 (31.3) | NA |
| Lymphoma | 9 (11.3) | NA |
| Solid tumors | 25 (31.3) | NA |
| Brain tumor | 16 (20.0) | NA |
| Other | 5 (6.3) | NA |
| No advance directive in medical record | 80 (100.0) | NA |
| Relationship of families to adolescents | ||
| Biological | ||
| Mother | NA | 60 (75.0) |
| Father | NA | 13 (16.3) |
| Adoptive mother | NA | 4 (5.0) |
| Aunt | NA | 1 (1.3) |
| Sexual partner | NA | 1 (0.8) |
| Girlfriend | NA | 1 (0.8) |
Abbreviation: NA, not applicable.