Major domains and example prompts & directing of discussion
1. Introduction & general discussion
[Explain the purpose of the interview]
Could you tell me about yourself and what does “having glaucoma” mean to you?
When did you find out you had glaucoma? How did you find out?
How did your doctor explain to you that you had glaucoma/elevated IOP?
2. Getting treatment for glaucoma
Tell me about what kind of treatment you had for elevated IOP and glaucoma?
How long was your treatment? Are you still on treatment? [What kind of treatment?]
What do you think were your greatest needs as you are going through treatment?
Why did you/did you not choose surgery?
Would you consider a minimally invasive procedure?
Has getting treatment impacted or restricted your lifestyle in any way?
What’s the worst thing about your glaucoma treatment? What do you find the most annoying? inconvenient?
Tell me about how getting treatment may impact or restrict your current lifestyle?
3. Understanding the treatment choices available
How do you talk to your [doctor/family/friend] about glaucoma?
Do you believe that you knew what to expect in terms of what life was going to be like as you were deciding to get glaucoma treatment or treatment to lower your IOP? What were you expecting from your [eye drops, surgery, laser, MIGS, etc] treatment?
Are there aspects of your glaucoma treatment that you feel that you didn’t understand?
Where do you get information about your glaucoma? Where do you get information about treatment options for glaucoma?
Do you look for health information online, e.g. YouTube videos, forums and chatrooms?
Are there areas concerning your glaucoma treatment for which you would have liked more information? [More information about side-effects and adverse events?]
4. Living with glaucoma
How does your glaucoma impact you emotionally? How do you feel about your glaucoma in the long run?
What are you not able to do now that you were able to do before you were diagnosed with glaucoma?
In what way has glaucoma affected how you perceive yourself?
What things have changed for you as a person since developing glaucoma?
In what ways does your glaucoma affect your social life? Do you feel you are missing out from social occasions? From leisure activities because of your glaucoma?
In what way has glaucoma impacted your family? Your friendships?
What is your biggest concern about having glaucoma?
What are some worries or fears about your glaucoma?
When you think of glaucoma, what things are on your mind?
How has glaucoma affected your role in the community?
What sort of visual symptoms do you experience because of your glaucoma?
Have you experience any eye pain? Blurry vision? Difficulty seeing?
Tell me about your eye pain, blurry vision, difficulties seeing…
Do you have any physical limitations?
Think about the last time you travelled? Can you describe how glaucoma affected this?
[General discussion about “having glaucoma,” elevated IOP or living with the disease.]
5. Other
How does glaucoma affect you at work? Financially?
What unwanted adverse events have you experienced because of your treatment?
How do different lighting conditions affect your vision?
Do you have other needs or concerns about your glaucoma treatment that we have not addressed?
Are there other aspects of living with glaucoma that you would like to discuss?
What do you think the ideal glaucoma treatment should have?