Domain | Question |
---|---|
Physical aspects of care | Thinking about your HF, which symptoms most affect your quality of life? |
Psychological aspects of care | Many people living with HF say they experience depression, sadness, or anxiety. I am curious about your experiences with depression or anxiety since you were diagnosed with HF. Have you had any feelings of sadness or depression? What about feelings of anxiety? |
Social aspects of care | How do you feel that your HF has impacted your relationships with your loved ones? |
Spiritual aspects of care | What role does spirituality play in your life? How do your spiritual practices impact how you deal with having HF? |
Ethical and legal aspects of care (i.e., advance care planning) | Do you have a cardiac device, like a defibrillator, or a pump? What kind of discussions have you and your cardiologist had about that device if your HF gets worse? |
Outcomes that matter to patients with HF | What are you hoping to get out of your health care regarding HF? |
Perceptions of supportive care | How familiar are you with the term “supportive care”? Can you please tell me what you know, or what you have heard about it? |
Perceptions of PC | Do you think there will come a point in the progression of your HF where you would like to see a PC specialist? What would that/those points be? |
Closing | Given everything we have talked about today, what does/would high-quality HF care look like to you? |
HF, heart failure; PC, palliative care.