Table. Demographic Data.
| Characteristic | No. (%) | |||
|---|---|---|---|---|
| Adults with SCD | Caregivers of children or adults with SCD | |||
| Group 1 (n = 28) | Group 2 (n = 29) | Group 1 (n = 30) | Group 2 (n = 20) | |
| Age, median (IQR), y | 34 (21-50)a | 30 (23-38) | 42.5 (31-52)a | 41 (35-46.5) |
| Sex | ||||
| Male | 7 (25) | 8 (27.6) | 7 (23.3) | 3 (15) |
| Female | 21 (75) | 21 (72.4) | 23 (76.7) | 17 (85) |
| Race | ||||
| African American | 24 (85.7) | 28 (96.5) | 25 (83.3) | 20 (100) |
| Other | 2 (7.14) | 1 (3.5) | 2 (6.7) | NA |
| Missing | 2 (7.14) | NA | 3 (10) | NA |
| Ethnicity | ||||
| Hispanic | 1 (3.6) | 3 (10.3) | NA | 1 (5) |
| Non-Hispanic | 24 (85.7) | 26 (89.7) | 25 (83.3) | 18 (90) |
| Missing | 3 (10.7) | NA | 5 (16.7) | 1 (5) |
| Marital status | ||||
| Single | 19 (67.9)b | 26 (89.7) | 8 (26.7) | 6 (30) |
| Married | 5 (17.9) | 2 (6.9) | 15 (50) | 12 (60) |
| Divorced/separated/widowed | 2 (7.1) | 1 (3.4) | 4 (13.3) | 2 (10) |
| Missing | 2 (7.1) | NA | 3 (10) | NA |
| Educational level | ||||
| High school or GED | 5 (17.9) | 6 (20.7) | 9 (30) | NA |
| Associate degree | NA | 2 (6.9) | NA | 4 (20) |
| Some college | 11 (39.3) | 12 (41.4) | 9 (30) | 3 (15) |
| Bachelor degree | 4 (14.3) | 6 (20.7) | NA | 7 (35) |
| Master degree or doctorate | 5 (17.9) | 2 (6.9) | 7 (23.3) | 5 (25) |
| Other/trade school | 1 (3.5) | 1 (3.4) | NA | 1 (5) |
| Missing | 2 (7.1) | NA | 5 (16.7) | NA |
| Employment | ||||
| Full time | 6 (21.4) | 1 (3.5) | 9 (30) | 10 (50) |
| Part time | 12 (42.9) | 19 (65.5) | 2 (6.7) | 3 (15) |
| None | 7 (25) | 9 (31) | 12 (40) | 7 (35) |
| Missing | 3 (10.7) | NA | 7 (23.3) | NA |
| Genotypec | ||||
| HbSS | 10 (35.7) | 19 (65.5) | 16 (53.33) | 14 (70) |
| HbSC | 7 (25) | 4 (13.8) | 4 (13.33) | 4 (20) |
| HbS-β-thalassemia | 4 (14.3) | 2 (6.9) | 1 (3.33) | 2 (10) |
| Other/not known/missing | 7 (25) | 4 (13.8) | 9 (30) | NA |
| Caregiver type | ||||
| Parent | NA | NA | 27 (90) | 20 (100) |
| Grandparent | NA | NA | 3 (10) | NA |
Abbreviations: IQR, interquartile range; NA, not applicable; SCD, sickle cell disease.
a
n = 26.
b
Includes 3 participants who reported significant other.
c
Genotype of child was indicated for caregivers.