Table 1 –

Summary of program characteristics (International Clearinghouse for Birth Defects Surveillance and Research)

Program	Delivery years	Total births	Ascertainment to at least 1 yr	Population based	Ascertainment from multiple sources	Degree of severity specified in ≥80% of cases
Argentinaa	2009–2010	42 136	No	No	No	No
Australiab	1980–2010	792 512	Yes	Yes	Yes	Yes
Canada (National)c	2005–2010	1 416 099	No	Yes	No	No
Alberta, Canadad	1980–2010	1 309 669	Yes	Yes	Yes	No
Chile-Maule e	2002–2010	119 900	No	No	No	Yes
Colombia	2001–2010	174 425	Yes	No	No	Yes
Costa Ricaf	1987–2010	1 842 791	Yesg	Yes	No	No
Czech Republic	1980–2010	3 597 530	Yes	Yes	Yes	Yes
Finland	1993–2010	1 068 457	Yes	Yes	Yes	Yes
Franceh	1980–2010	2 819 326	Yes	Yes	Yes	No
Germanyi	1987–2010	336 716	Yes	Yes	Yes	No
Hungary	1980–2010	3 507 915	Yes	Yes	Yes	No
Iranj	2005–2010	130 724	Yes	No	Yes	–k
Lombardia, Italy	1999–2010	179 484	Yes	Yes	Yes	No
Tuscany, Italyl	1992–2010	519 749	Yes	Yes	Yes	No
Maltam	1993–2010	77 261	Yes	Yes	Yes	Yes
Mexicon	1980–2010	1 093 745	No	No	No	Yes
New Zealand	1980–1993	1 638 216	Yes	Yes	Yes	–k
	1996–2010
Northern Netherlands	1981–2010	496 810	Yes	Yes	Yes	Yes
Slovak Republic	1995–2010	902 372	Yes	Yes	No	Yes
Spaino	1980–2010	2 648 286	No	No	No	Yes
Sweden	1980–2010	3 166 009	Yes	Yes	Yes	No
Arkansas, USAp	1993–2010	684 001	Yes	Yes	Yes	Yes
Atlanta, GA, USAq	1980–2010	1 299 822	Yes	Yes	Yes	No
Texas, USA	1996–2010	5 216 949	Yes	Yes	Yes	No
Utah, USAr	1999–2010	615 886	Yes	Yes	Yes	Yes
Waless	1998–2010	430 710	Yes	Yes	Yes	No

^aNational Network of Congenital Anomalies of Argentina (RENAC).

^bWestern Australian Register of Developmental Anomalies.

^cCanadian Congenital Anomalies Surveillance System.

^dAlberta Congenital Anomalies Surveillance System.

^eRegistro de malformaciones congénitas del Servicio de Salud Maule (RRMC-SSM).

^fCentro de Registro de Enfermedades Congénitas.

^gFor births during 2009 and later only.

^hRegistre des Malformations en Rhône-Alpes (REMERA).

ⁱSaxony-Anhalt.

^jTabriz Registry of Congenital Anomalies.

^kNo information on degree of severity.

^lTuscan Registry of congenital defects (RTDC).

^mMalta Congenital Anomalies Register.

ⁿRegistration and Epidemiologic Surveillance of External Congenital Malformations (RYVEMCE).

^oSpanish Collaborative Study of Congenital Malformations (ECEMC).

^pArkansas Reproductive Health Monitoring System.

^qMetropolitan Atlanta Congenital Defects Program.

^rUtah Birth Defect Network.

^sCongenital Anomaly Register & Information Service for Wales.