TABLE 1.
Population Statistics
| Demographics | Number of SWS Participants (n = 277) |
|---|---|
| Age | |
| Children (<18 years old) | 237 (85.6%) |
| Adults | 40 (14.4%) |
| Gender | |
| Female | 149 (53.8%) |
| Race | |
| Caucasian (white) | 233 (84.1%) |
| African American (black) | 24 (8.7%) |
| Asian | 21 (7.6%) |
| American Indian or Alaskan native | 4 (1.4%) |
| Native Hawaiian or other Pacific Islander | 2 (0.7%) |
| Brain involvement | |
| Unilateral | 226 (81.6%) |
| Bilateral | 51 (18.4%) |
| Port-wine birthmark | |
| None | 33 (11.9%) |
| Unilateral | 145 (52.3%) |
| Bilateral | 99 (35.7%) |
| Glaucoma | |
| None | 141 (50.9%) |
| Unilateral | 100 (36.1%) |
| Bilateral | 33 (11.9%) |
| History of seizures | |
| Yes | 240 (86.6%) |
| No | 37 (13.4%) |
| Year of enrollment | |
| 2010 | 31 (11.2%) |
| 2011 | 52 (18.8%) |
| 2012 | 23 (8.3%) |
| 2013 | 58 (20.9%) |
| 2014 | 35 (12.6%) |
| 2015 | 26 (9.4%) |
| 2016 | 45 (16.2%) |
| 2017 | 7 (2.5%) |
Abbreviation:
SWS = Sturge-Weber syndrome