Table 6.

Community support systems

Importance of family, home and Country in aftercare	“We did get help in the community. We did get a lot of support. Community helped a lot with my other kids, like family. Family helped rub cream on him all the time, to give me a break. There was always someone to take my daughter to her appointments.” “Yeah, there’s three – our three sisters and two brothers and all our kids from our siblings, all our nieces and nephews, they all call us mums and dads. There’s three mums and two dads plus grandfathers and other mums. But we’re a tight little group, but all Aboriginal families have all got that connection with kids. It would be good if we could get help from home hospital and stay together. No matter that’s your – my big sister, that’s your mum too, and so on and so on. You can have 10 mums; be the richest kid in the world.”
Information needed for the parent to help with home aftercare.	“I think just someone that I can actually talk to and just say hey, look, is this normal, is this not? would be good. And just, even if it’s phone contact once a month or something like that, just to touch base and say how’s things going, then, yeah. But it was – I’ve been through one child having open heart surgery but this was completely different. It’s, kind of, this threw me because I didn’t have any information I didn’t know what to do when we got home.”
Training needed for remote and rural health workers in burn aftercare	“Because even [the country hospital] when they sent us over to do it, the dressing, the lady was lovely, you know, can’t be helped, but Laylaa wasn’t happy with the dressing. She was scared it was going to get infected. You know, like I wish we had more people trained for the country. Country nurses need teaching with burn dressings.”

^aNot the child’s real name