| Researchers |
Only university researchers. |
Only university researchers or NHS staff. |
Only university researchers, NHS staff or government researchers. |
University researchers, NHS staff, government researchers and commercial researchers such as market research organisations or pharmaceutical companies. |
| Type of information |
Information from your GP records being linked with information from your other NHS health records (e.g. hospital records). |
Information from your NHS health records being linked with information from your social care or education records. |
Information from your NHS health records being linked with information from your social care, education records or from your employment and benefits records. |
Information from your NHS health records being linked with information from your social care, education, employment, and benefits records, as well as information collected about you in the private sector (e.g. through online shopping accounts). |
| Purpose |
Research using linked information should only be conducted if it will have direct benefits for the people whose information is being used. |
Research using linked information should only be conducted if it will have general public benefits. |
Research using linked information should be allowed for any reason. |
|
| Profit-Making |
Nobody should be allowed to profit from research carried out using linked information. |
Any profit made from research carried out using linked information should be shared with the public. |
Any profit made from research carried out using linked information should be invested into public services. |
Any profit made from research carried out using linked information should be kept by those carrying out the research. |
| Oversight |
The process should be overseen by a non-governmental independent body. |
The process should be overseen by the relevant public service(s); for example, research that uses information from people's health records should be overseen by the NHS. |
The process should be overseen by the Scottish Government. |
The process should be overseen by the organisations undertaking the research. |
