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. 2018 Jun 26;3(1):429. doi: 10.23889/ijpds.v3i1.429

Table 2: Example of scenario choice.

Q) Which of these scenarios would you prefer?
1 2
The researchers are: Only university researchers. Only university researchers, NHS staff or government researchers.
The type of data being linked: N.B. All data would be anonymous Information from your GP records being linked with information from your other NHS health records (e.g. hospital records). Information from your NHS health records being linked with information from your social care, education records or from your employment and benefits records.
The purpose of the research: Research using linked information should be allowed for any reason. Research using linked information should only be conducted if it will have direct benefits for the people whose information is being used.
Profit-Making: Any profit made from research carried out using linked information should be invested into public services. Any profit made from research carried out using linked information should be shared with the public.
Oversight: The process should be overseen by the Scottish Government. The process should be overseen by the relevant public service(s); for example, research that uses information from people’s health records should be overseen by the NHS.

I prefer this scenario ☐ I prefer this scenario ☐ Neither scenario is acceptable to me ☐