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. 2018 Jun 26;3(1):429. doi: 10.23889/ijpds.v3i1.429

Table 5: Overall Most and Least Preferred Scenarios.

Overall Preferred Scenario Overall Least Preferred Scenario
The researchers are: Only university researchers or NHS staff. University researchers, NHS staff, government researchers and commercial researchers such as market research organisations or pharmaceutical companies.
The type of data being linked: Information from your GP records being linked with information from your other NHS health records (e.g. hospital records). Information from your NHS health records being linked with information from your social care, education, employment, and benefits records, as well as information collected about you in the private sector (e.g. through online shopping accounts).
The purpose of the research: Research using linked information should only be conducted if it will have general public benefits. Research using linked information should be allowed for any reason.
Profit-Making: Any profit made from research carried out using linked information should be invested into public services. Any profit made from research carried out using linked information should be kept by those carrying out the research.
Oversight: The process should be overseen by a non-governmental independent body. The process should be overseen by the organisations undertaking the research.