Table 2.
Phase 2 participant characteristics.
| Variable | Interview participants (n=12) | Survey respondents (not interviewed; n=17) | |
| Child’s current age (years), mean (SD) | 12.3 (3.1) | 12.6 (3.7) | |
| Child’s age at diagnosis with T1Da (years), mean (SD) | 7.9 (2.8) | 7.3 (3.4) | |
| Child’s age at diagnosis with ASDb (years), mean (SD) | 5.6 (3.5) | 5.6 (3.8) | |
| Self-reported HbA1cc, % (mmol/mol) | 8.6 (70) | 7.7 (61) | |
| Laboratory confirmed HbA1c, % (mmol/mol) | 8.7 (72) | N/Ad | |
| Country of residence, n (%) | |||
|
|
United States | 12 (100) | 17 (100) |
| Gender, n (%) | |||
|
|
Male | 7 (58) | 10 (59) |
|
|
Female | 5 (42) | 7 (41) |
| Race, n (%) | |||
|
|
White | 11 (92) | 16 (94) |
|
|
Black | 0 (0) | 1 (6) |
|
|
More than 1 race | 1 (8) | 0 (0) |
| Ethnicity, n (%) | |||
|
|
Hispanic or Latino | 1 (8) | 0 (0) |
|
|
Not Hispanic or Latino | 11 (92) | 16 (94) |
|
|
Unknown/not reported | 0 (0) | 1 (6) |
| Setting, n (%) | |||
|
|
Suburban | 10 (83) | 10 (59) |
|
|
Urban | 2 (17) | 4 (23) |
|
|
Rural | 0 (0) | 3 (18) |
| CGMe use, n (%) | |||
|
|
Yes | 8 (67) | 13 (77) |
|
|
No | 4 (33) | 4 (23) |
| Insulin pump use, n (%) | |||
|
|
Yes | 6 (50) | 14 (82) |
|
|
No | 6 (50) | 3 (18) |
| Tubeless pump use among subset of pump users, n (%) | 5 (83) | 7 (50) | |
| Distance to provider, n (%) | |||
|
|
0-10 miles | 3 (25) | 4 (23) |
|
|
11-20 miles | 2 (17) | 3 (18) |
|
|
21-50 miles | 7 (58) | 6 (35) |
|
|
>50 miles | 0 (0) | 4 (23) |
| Frequency of provider visits (usual care is every 3 months), n (%) | |||
|
|
<3 months | 1 (8) | 0 (0) |
|
|
3-6 months | 11 (927) | 16 (94) |
|
|
>6 months | 0 (0) | 1 (6) |
| ABAS-3f GACg standard score, mean (95% CI) | 71.2 (67.9-74.4) | N/A | |
aT1D: type 1 diabetes.
bASD: autism spectrum disorder.
cHbA1c: hemoglobin A1c.
dN/A: not applicable.
eCGM: continuous glucose monitoring.
fABAS-3: adaptive behavior assessment system, third edition.
gGAC: general adaptive composite.