Table 1.
The characteristics of IBD patients and Caregivers
| Variable | CD (n = 53) | UC (n = 49) | Caregivers (n = 102) |
|---|---|---|---|
| Age, mean (SD) | 37.7 (17.1) | 40.9 (15) | 48 (15.5) |
| Gender % (n) | 69.8% Female (37) | 69.4% Female (34) | 48% Female (49) |
| Race % (n) | |||
| White Non-Hispanic | 67.9% (36) | 71.4% (35) | 58.8% (60) |
| White Hispanic | 11.3% (6) | 12.2% (6) | 13.7% (14) |
| Other | 5.6% (3) | 8.2% (4) | 11.8% (12) |
| Black/African American | 5.6% (3) | 0% (0) | 3.9% (4) |
| Asian | 7.5% (4) | 8.2% (4) | 11.7% (12) |
| American Indian/Alaska Native | 1.9% (1) | 0% (0) | 0% (0) |
| Abdominal Surgery % (n) | 52.8% Yes (28) | 12.2% Yes (6) | N/A |
| Fistula % (n) | 41.5% Yes (22) | 16.3% Yes (8) | N/A |
| Medication Use % (n) | N/A | ||
| Biologics | 16% (16) | 6% (6) | |
| 5ASA | 2% (2) | 11% (11) | |
| Immunomodulators | 5% (5) | 1% (1) | |
| Steroids | 2% (2) | 4% (4) | |
| Others (Antibiotic, Antispasmodic, Anti-diarrheal) | 0% (0) | 2% (2) | |
| Combo | 11% (11) | 15% (15) | |
| No IBD Related Medication | 18% (18) | 7% (7) | |
| Disease State (mHI) % (n) | 58.5% Active Disease (31) | 38.8% Active Disease (19) | N/A |
| Disease Location | 26.4% (14) Small Bowel | 2.0% (1) Proctitis | |
| 17.0% (9) Large Bowel | 69.4% (34) Pancolitis | ||
| 37.7% (20) Both | 12.2% (6) Left-sided | ||
| 18.9% (10) Unknown | 16.3% (8) Unknown | ||
| Disease Duration in years, mean (SD) | 14.2 (9.8) | 16.8 (18.6) | N/A |
| Quality of Life, mean (SD) | 44.4 (12.2) | 47.3 (13.1) | N/A |
| Employed % (n) | 43.4% Yes (23) | 59.2% Yes (29) | 71.6% Yes (73) |
| Of those employed: | Due to IBD | Due to IBD | Due to IBD caregiving |
| Absenteeism (Yes/No) last week % (n) | 52.2% Yes (12) | 27.6% Yes (8) | 38.4% Yes (28) |
| If yes, mean absenteeism hours % | 15% | 7.1% | 9.1% |
| Of those employed: | Due to IBD | Due to IBD | Due to IBD caregiving |
| Presenteeism (Likert) % (n) | 78.3% Yes (18) | 58.6% Yes (17) | 57.5% Yes (42) |
| Mean Presenteeism % | 30.6% | 27.3% | 21.5% |
| For the entire group: | Due to IBD | Due to IBD | Due to IBD caregiving |
| Activity Impairment (Likert) % (n) | 84.9% Yes (45) | 71.4% Yes (35) | 52% Yes (53) |
| Mean Activity Impairment % | 38.9% | 36.3% | 18.7% |
| Relationship to Patient % (n) | N/A | N/A | 55.9% Spouse or Partner (57) |
| 23.5% Parent/Family member (24) | |||
| 13.7% Child (14) | |||
| 6.9% Other (7) | |||
| Environment % (n) | N/A | N/A | 74.5% Living with Patient (76) |
| 25.5% Living separately of Patient (26) | |||
| Education Level % (n) | N/A | N/A | 77.5% College or Post-College Degree (79) |
| 22.5% College-degree or less (23) | |||
| Annual Income level % (n) | N/A | N/A | 47.1% $100,000 or more (48) |
| 52.9% Less than $100,000 (54) | |||
|
Mean Time Spent Caregiving (hours/week SD) |
N/A | N/A | 12.2 h (25.4 h) |
| Mean Duration of Caregiving (SD) | N/A | N/A | 8.1 years (8.5) |
| Chronic Disease % (n) | N/A | N/A | 13.7% Yes (14) |